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Other => Off-topic => Topic started by: mizerydearia on December 24, 2011, 06:34:48 PM



Title: mizerydearia's obnoxious health escapade
Post by: mizerydearia on December 24, 2011, 06:34:48 PM
So, I feel completely and overwhelmingly obnoxious for this (and some previous efforts) to promote, mention or otherwise publicize this particular health issue that I am suffering and that is interrupting my participation and productivity relative to bitcoin-related projects and developments as if I am some sort of selfish greedy scam artist pursuant of an effort to take advantage of others' generosities, helpfulnesses, emotions, concerns, etc, yet, regardless, I must tell the world nonetheless, as an effort to better help myself and everyone else that is suffering similar and other derivative health issues.  The world must know!

I'll keep this short and simple, and no, I'm not asking for any help, assistance or anything, because I fucking (profanity used as implication of seriousness if it can even be evaluated as such) despise greed...too much that it's unhealthy...oooh, perhaps it is my massive despisedness that is the cause for my health issues (I'll have to look into that)...

Here (http://www.reddit.com/r/Health/comments/npbfu/i_suffer_from_constant_nibblelike_sensations_that/)'s my reddit post.

Here's my journal: https://gitorious.org/health-journal/mizerydearia/trees/master

Teh Aind!


Title: Re: mizerydearia's obnoxious health escapade
Post by: BadBear on December 24, 2011, 06:55:20 PM
Have you seen a doctor?  Or a psychiatrist?


Title: Re: mizerydearia's obnoxious health escapade
Post by: BitcoinPorn on December 24, 2011, 07:00:36 PM
I wish you the best in your health, but I worry you are not making it to proper help/aid, is that also motivation behind such public display of your self findings?


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on December 24, 2011, 07:09:33 PM
I have, however, the visits were uneventful, unhelpful and unproductive.  The last visit with a doctor at a hospital in Wisconsin consumed much of my time trying to convince me that my issue was a psychological disorder and that any other issue (e.g. bugs, bacteria, fungii, etc) is not something that the doctor or anyone at the hospital could treat and that any blood test work they would pursue would not test for anything relating to that.  The hospital was Aurora West Allis Medical Center.  I believe the lack of helpfulness and the persistance of psychological disorder is merely an effort related to the corruption (laziness and/or greed?) of industry, especially relative to the minimal or lack of monetary or other forms of wealth in which I am not worthy or valuable enough to receive related health treatments, inspections or other efforts to combat my particular health issue.  Actually, I think the reality of which there is no cure or resolution for this particular health issue in which some others (http://www.medhelp.org/posts/Undiagnosed-Symptoms/Invisible-Bugs-crawling-on-skin-Strange-sensation/show/1093529) have been suffering for almost a decade and maybe some even longer, is related to the reality that many of us humans that endure these health issues are not wealthy enough to be worthy of necessary research, investigation, understanding or related health procedures to establish a reliable and effective remedy, medicine or cure.  Many others who have been suffering from this and other derivative health issues have wasted so much monies pursuing ineffective treatments as suggested and offered by multiple doctors or other health professionals.

Though I express the sentiment above especially based on the lack of helpfulness from the last doctor I visited, I have started a journal now and have better documented my experiences that may be more usefully or impactfully recognized that I'm not crazy or imagining things and perhaps it may spark some effort to consider the reality of the situation and to allow for better treatment for myself or others.  We shall see.  My publicizing the journal here and elsewhere is an effort to spread awareness of it and also maybe to try to encourage for better treatment as a result, if not for myself, then for everyone else that suffers similarly.



I wish you the best in your health, but I worry you are not making it to proper help/aid, is that also motivation behind such public display of your self findings?

Yes.  I have been quite unproductive and lazy even to pursue effort of seeing a doctor, but that was primarily based on my bias that no doctor will be helpful for me based on my already established biases of the health industry but also influenced by my last visit with a doctor just a couple months ago which acknowledged my doubts/biases (though, I don't mean to pursue stereotypical consideration that just because one hospital or a couple doctors at the hospital confirmed my doubts/biases that all doctors will as well.  I shall keep an open mind in that regard.)  But now that I have a journal and am detailingly and effortfully documenting my situation more reliably and informatively, I have a kind of inspiration to be more effortful and accomplishing to succeed in my quest (wooo, I'm on a quest).  Also, publicizing my issue is contributory towards my inspiration as well since it provides further incentive for me to be more effortful and productive in accomplishing my goals and desires to be peacefully free from this health defect in the sense that not only would I let myself down otherwise, but I would also let others down too in the case that they are aware of it and perhaps cheering me on or whatever.  Already, the few people I had collaborated with privateishly are concerned and worried for me and want to help me, and just knowing that is inspirational.  Buuut, I need moar inspiration.  MOAR INSPIRATION!!  So, I shall tell the world.  And it's not just for me.  I want to help myself, but I also want to try to help everyone else that suffers similarly.  So, what better way than to provide information?  That is the point of my journal.  And that is the reason why I'm openly publicizing here.  It's not about me, but more so about the reality of the health issue and it is for all human existences that are suffering and surviving perhaps still hopeful for freedom and peace.   blah, blah, go miz go!


Title: Re: mizerydearia's obnoxious health escapade
Post by: RandyFolds on December 24, 2011, 07:26:05 PM
I'll just leave this here...

http://en.wikipedia.org/wiki/Morgellons


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on December 24, 2011, 07:45:30 PM
I'll just leave this here...

http://en.wikipedia.org/wiki/Morgellons

Already listed at https://gitorious.org/health-journal/mizerydearia/blobs/master/infos and https://gitorious.org/health-journal/mizerydearia/blobs/master/links


Title: Re: mizerydearia's obnoxious health escapade
Post by: BrightAnarchist on December 24, 2011, 07:57:35 PM
Can you describe the sensations in more detail? Do you experience pain of any burning or aching variety? Are there any visible abnormalities, or do you look comoetely healthy? How long have you had this? Has it increased in intensity over time? Does it wax and wane? Did it begin in the gnital region or lower body region, or pretty much evwrywhere ( that is, what is the pattern of spreading )? Do you find any relief in symptoms from relaxing in a hot bath?

Sorry for all the questions but I too have a disease that is very debilitating and no doctors were able to diagnose ( every test in the world came back negative, they ended up kicking me out of the hospital and telling me it was all "in my head"). I was in so much physical pain that for the first and only time in my life I consiered suicide. But the free market saved me, a bit of time on google and then a visit to a private clinic, I found I was suffering from full body chronic myofacial pain (CMP). I still have it now, it's a very weird disease that can produce all kinds of weird and painful sensations, but I have slowly been getting better since I started treatment. It feels like fibromyalgia in some ways, but luckily, it's very treatable and much more well understood ( except for some reason not understood by the 10+ idiot doctors that I saw ). It is also particularly virulent in the genital region simply because of referred pain from pelvic muscles ( also called chronic pelvic pain or CPPS, which is merely a subset of myofacial pain/CMP). But it is not due to a virus or bacteria or anything, it's a neuro-muscular disorder.

Maybe there is no connection here, but the point I need to make is to NOT GIVE UP keep researching, it is up to you to figure it out, you will find out the cause eventually. I lost all respect for doctors after my journey, and realize now that you are truely on your own to fight for your life.


Title: Re: mizerydearia's obnoxious health escapade
Post by: JusticeForYou on December 24, 2011, 07:59:34 PM
If one seeks answers from a Psychologist/ Psychiatrist, they tend to find psychiatric problems. If from dermatologist, they tend to find a derma-logical disorder and so on.

It would seem that you need  Dr. Gregory House (fictional) but his real life equivalent.

I also despise, greed, not to a point that it should not exist but to keep it in a relative perspective to the basic needs of people. I do not dislike profit but insane profit.

With the rational being covered.

There are wolves in the world. There are conspiracies (although conspirators are the first to denounce them) that go on for a multitude of reasons. Some to discredit ones ability to cause harm to an organization. (Thinking of the Medal of Honor winner being called 'crazy' by his company because of one email and a protest against selling arms.) Their are many others also, public and private.

Sometimes, threats, can be indirect but must be taken seriously because the people making said threats have power. It is best to let those go, time is the remedy for the powerful. They tend to eat each other up.

 (Have you pissed off any powerful people or organizations?) You must lay out all the evidence before you decide and apply Occam's Razor. Which by the way, I always found funny. Because if people were to conspire, they would apply this principle and choose a method that would get discarded.

Perfect Paranoia is perfect awareness but at a cost.  I have found a solution is to take comfort in people you can trust (I mean really Trust) and just continue cause sometimes it is better to just let it go. Nature is the the best cure for the evil.

Arrogance is the downfall for powerful people and organizations. They will assume they are untouchable and bam the Roman Empire no longer exists. The intelligence of a person isn't measured with paper, it is measured with thought.

I deluded this post a little and I am sorry to do so. I would think your first step is to see your 'Dr. House' and work from there.



Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on December 24, 2011, 08:32:07 PM
Can you describe the sensations in more detail? Do you experience pain of any burning or aching variety? Are there any visible abnormalities, or do you look comoetely healthy?

Depending on the intensity, the pain is similar to that of a bite from a bug, for bugs that bite.  Mosquito bites are usually painless, and so that is not much of a comparison.  Perhaps in addition a bite sensation, a pinching sensation may be helpful to understand, each pinch sensation having a variable intensity, in which the most intense are quite painful in the sense that the pain is sudden or instant and with touching, it is relieved and the remainder of pain is mental or psychological.  I do not feel any burning or itching besides that of the immediate kind of itching sensation related to that of pinching or nibbling.  The itching does not persist.

Prior to December 9th (see this (https://gitorious.org/health-journal/mizerydearia/blobs/master/irregularities)) I did not have any abnormalities whatsoever.  Thus, for approximately seven months there were no noticeable signs other than perhaps my hair, which at this time I feel is a very related and important aspect of my health issue.  I believe it is related, but am not entirely certain.  However, on December 9th, I endured a most intense nibble sensation and during the minute after it happened I felt with my finger touching the affected area behind my right ear, as if something very tiny was working its way into my skin.  It produced a scab like wound that lasted for a while.  That wound is gone now.  There are a couple other irregularities and also some other undocumented oddities, but I do not feel they are useful, reliable, worthy, or visually revealing enough to assume perspective of physical health issue.  Though, perhaps microscopically relative to bacteria or fungii there may be noticeable physical defects, perhaps especially prominently in my hair.  I feel many nibbles occur on my head and from my hair.  I am very worried about my hair/head as if there is something up there.  I cannot see what goes on up there.

I look healthy overall I think... though, my physical appearance is perhaps deteriorating kind of like the comparison of mugshots of a person over the several year span of their criminality which portrays the deteriorating facial evolution.  Though, my evolution of facial appearance may not seem unhealthy as of yet.


How long have you had this?
Since approximately February of 2011.

Has it increased in intensity over time?
Kind of.  Towards the beginning it was minimal, but gradually and perhaps quickly (a month or two?) grew in intensity or frequency in which since then the intensities or frequencies still fluctuate perhaps sporadically or it seems kinf of patternistic also...a bit.  It is patternistic in the sense that during both of my nibble logs I was anticipating another swarm of sensations (what I'm experiencing right now, actually, on the surface of my head, over and over and over, 1-20 second intervals), but there was no swarm.  I had the idea that swarms would be daily, but it seems more patternistic that swarms may skip a day or two.  But then sometimes I endure two or more swarms in a single day.  Regardless of consideration of patterns, the nibbles are constant in which the interval varies from 0 seconds to maybe at the very most ten minutes, but generally 20-30 seconds

Does it wax and wane?

I'm not sure what this means.

Did it begin in the gnital region or lower body region, or pretty much evwrywhere ( that is, what is the pattern of spreading )?
No.  And also I haven't had sexual intercourse or other sexual relations or intimacy (other than hugging a couple of people) in approximately five years.

Do you find any relief in symptoms from relaxing in a hot bath?
Definitely.  I've been taking baths and long showers now practically twice a day because I need the relief.  Though, also I have taken baths waiting to feel the sensations whilst under water to better determine perhaps the reality of whether the sensations are triggered externally or internally.  Though recently a couple times I think I have felt the sensations while under water, I am not entirely certain and as of yet do not have any reliable evaluations related to under water other than that for the most part, it seems I am not affected under water.

Sorry for all the questions but I too have a disease that is very debilitating and no doctors were able to diagnose ( every test in the world came back negative, they ended up kicking me out of the hospital and telling me it was all "in my head").
Mm, no worries at all, and I appreciate the questions (though, also you can find answers to some from reading my journal, but maybe tl;dr type of effort is evolutionary or societally normal behavioral expectation now and though I am still writing tl;dr answers, they are directly affiliated with your effortfully typed questions asked on demand and easily locatable as opposed to having searching through prior historical documentation/information...history, it's just that...history.  Repetition ftw!) as it helps to provide perhaps better searchability in the case others experience similar health issues, perhaps they may stumble upon my documentations and informations similarly to how I stumbled upon others' (http://www.medhelp.org/posts/Undiagnosed-Symptoms/Invisible-Bugs-crawling-on-skin-Strange-sensation/show/1093529) experiences as well (and disappointingly, my attempt to participate there resulted in censorship and bannage (http://www.reddit.com/r/Health/comments/mma05/medhelporg_banned_my_account_because_of/))

Maybe there is no connection here, but the point I need to make is to NOT GIVE UP keep researching, it is up to you to figure it out, you will find out the cause eventually. I lost all respect for doctors after my journey, and realize now that you are truely on your own to fight for your life.
Yeah, thanks.  I realize that and in relation to my biases, that is the basis for my full disclosure and journalistic documentation.  The health industry may keep privatized records on their patients.  Similarly, I'm keeping open public records on my healths.

(Have you pissed off any powerful people or organizations?) You must lay out all the evidence before you decide and apply Occam's Razor. Which by the way, I always found funny. Because if people were to conspire, they would apply this principle and choose a method that would get discarded.

I have not.  Thanks for Occam's Razor reference.

I guess even though I suggested my efforts are to be helpful for others than just myself, that may not be possible at all considering all humans health issues are unique and must be investigated separately...though, at least the information I provide as part of my journal and other discussions may (http://t3.gstatic.com/images?q=tbn:ANd9GcSLaEznVpqbJmc1UBDWvId2zyI2rDDW8cZc66qz_PXJejIbN6zf4xWRcL9h) be useful.


Title: Re: mizerydearia's obnoxious health escapade
Post by: RandyFolds on December 24, 2011, 10:12:59 PM
When I used to swim competitively, my skin would get so dry that I would be unable to sleep for the crawling and itching feelings.

Is there an environmental contaminant that you come in contact with regularly? What industry is near your home?


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on December 24, 2011, 10:22:25 PM
The health issue began shortly after I moved into a slummy apartment in the ghetto of Milwaukee, WI.  The apartment was incredulously disgusting and filthy.  For example the refrigerator hadn't been opened for a couple years (as per slumlord's admittance) and when I did open it, I held my breathe and ran away to let the odor dissipate.  Inside was blackness and thousands of bug shell remains.  I'm fairly confident that my health issue is related to living in that location.

At first there were bugs and the bugs were a constant, since February.  I killed several of them as they flew in front of me.  The nibbles began around then.  The bugs flew around, but less visibly afterwards.  I saw them, but never on me or nibbling on me.  Yet, I had influence or idea that they were the cause for my nibbling sensations.  But since that beginning, I have never seen bugs nibble on me.  The bugs persisted and followed me everywhere, including when I was in Warszawa, Poland.  But since I returned from Poland, now they have disappeared.  e.g. there are no more bugs.  But the nibbles persist.  Also, the damage to my hair began around the beginning of this year after I moved into that apartment.

I remember distinctly that everything began after moving into the apartment because I did not have any of these experiences prior to that.  Buut, I cannot declare or be certain that I contracted the health issue in relation to living in the apartment, yet it seems fairly accurate or reliable that that is the case.

A bit more details about my lifestyle while living in that apartment.

From the day that I moved in to the apartment to the day that I left, I was in the apartment practically 24/7 other than going out to buy food.  I endured the disgustingness that was the apartment and the dirtiness was preserved.  It was too overwhelmingly disgusting to clean and I didn't have the money to afford cleaning materials.  I endured living there because I had nowhere else to go other than homelessness and my father insisted and offered to pay the us$370/mo rent expense and additional expenses (electricity/Internet).

Gah...I really miss Appleton.  Ever since the day that my father came to visit me and insist to take me back to Milwaukee (as part of his pleading with me to help him with some things including teaching newly arrived (from another country) family members that couldn't speak English), my life has devolved so devastatingly and dramatically, though I'm not going to elaborate about those issues.  My sole concern which is impacting me most devastatingly is this health issue.

My next efforts are to contact doctors (https://gitorious.org/health-journal/mizerydearia/blobs/master/healthcontacts.wisconsin) (after holidays).  For now I wait at least until Monday.

Oh, perhaps this community can help me in my effort to contact doctors.  I have no idea what to say or ask or whether I should make a statement, ask a question or both.  What perspective should I pursue in my contacting each of the doctors?


Title: Re: mizerydearia's obnoxious health escapade
Post by: BrightAnarchist on December 24, 2011, 10:56:02 PM
Anything else other than the crawling sensations? Any shooting pain, cramps, muscle spasms, numbness, weakness, constipation?

Also, have you had injury or accident (like a car accident) or any kind of surgery? Have you had an MRI or EMG done?


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on December 24, 2011, 11:09:17 PM
Anything else other than the crawling sensations? Any shooting pain, cramps, muscle spasms, numbness, weakness, constipation?

Also, have you had injury or accident (like a car accident) or any kind of surgery? Have you had an MRI or EMG done?

ugh.. I just typed a lengthy post and it's gone now.  Anyhow, crawling is inaccurate.  The sensations are more like nibbling or pinching or that of something cutting through and injecting itself into me (such as that of the experience I endured on December 9th which was most intense)


Title: Re: mizerydearia's obnoxious health escapade
Post by: BitcoinPorn on December 24, 2011, 11:38:26 PM
My next efforts are to contact doctors (https://gitorious.org/health-journal/mizerydearia/blobs/master/healthcontacts.wisconsin) (after holidays).  For now I wait at least until Monday.

Oh, perhaps this community can help me in my effort to contact doctors.  I have no idea what to say or ask or whether I should make a statement, ask a question or both.  What perspective should I pursue in my contacting each of the doctors?

I think this is the best bet.  Health care is available, look hard, check local colleges and as many walk ins as possible to see any options.   If you have to, go to the emergency room, tell them you fainted then describe the rest of your real symptoms.


Title: Re: mizerydearia's obnoxious health escapade
Post by: teflone on December 25, 2011, 01:23:38 AM
If you think its related to your living environment, I suggest moving.. I know, not easy.. 

Or try staying away from your place for an extended period to gauge response..


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on December 25, 2011, 02:06:28 AM
If you think its related to your living environment, I suggest moving.. I know, not easy.. 

Or try staying away from your place for an extended period to gauge response..

I think it originated from a living space, but it has preserved through several spaces including another country and back.  Moving alone will not help.  I must pursue other efforts and remedies to alleviate the situation.  Considering humans are 90-99% microbes/bugs (http://www.ted.com/talks/bonnie_bassler_on_how_bacteria_communicate.html), it seems likely that I will have to pursue some kind of treatment to minimize/reduce or destroy the affected infestation inside my body and perhaps also outside such as on my hairs and floating around like fungal spores.  Though I am not a doctor, and my continued recognization of spore (https://en.wikipedia.org/wiki/Spore_%28game%29) infestation may be inaccurate.


Title: Re: mizerydearia's obnoxious health escapade
Post by: BrightAnarchist on December 25, 2011, 10:55:19 PM
If you think its related to your living environment, I suggest moving.. I know, not easy.. 

Or try staying away from your place for an extended period to gauge response..

I think it originated from a living space, but it has preserved through several spaces including another country and back.  Moving alone will not help.  I must pursue other efforts and remedies to alleviate the situation.  Considering humans are 90-99% microbes/bugs (http://www.ted.com/talks/bonnie_bassler_on_how_bacteria_communicate.html), it seems likely that I will have to pursue some kind of treatment to minimize/reduce or destroy the affected infestation inside my body and perhaps also outside such as on my hairs and floating around like fungal spores.  Though I am not a doctor, and my continued recognization of spore (https://en.wikipedia.org/wiki/Spore_%28game%29) infestation may be inaccurate.

You should get checked for bacteria and parasites just to allieviate your concern about that potential. However, your description seems more neurological to me than caused by any kind of infection. Infection of any type would likely make you sick ( throwing up, etc ) have you seen a neurologist?

Also, had you been suffering from a lot of stress prior to the onset of symptoms? Stress shuts down immune activity and increases muscle tension and can cause nerve injury. In my case once I stopped worrying about my condition, I finally started to slowly improve. My advice for you if you don't know what it is yet, you should keep journaling, see more doctors, stay calm, and above all, do the activities that relieve your symptoms as much as possible, because they could be the key to eventually eliminating them. If a hot bath helps, then do this every day for an hour and see if after a month you notice any difference in symptoms. I sit in a really hot bath every day for about 2-3 hours, and after one month I'm finally really noticing a marked decrease in symptoms. Basically, just journal what you feel symptomatically, and what you were doing physically and how you were feeling emotionally at th onset, and eventually patterns may emerge. With these patterns, you can learn to avoid aggravating thoughts and actions, and pursue what seems to help.

I would try the doctor route for a bit, but if they can't help or figure it out, I would try the approach I have outlined above, if you can find any correlations they could be the key to getting better.


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on December 26, 2011, 12:25:56 AM
As of yet I haven't seen a neurologist, but I would like to.

I've suffered from various forms of distressful efforts or thoughts throughout my life, some quite severe and overwhelming.  However, at the time I contracted the nibbling sensations, I don't think any stress was involved, though, I had been quite distressed around the time.

I'll provide some brief story-like details.

I lived in Appleton for 6.5 years without any health issues.
(briefly: I do not get along with my parents.)
My father kind of begged me to come to Milwaukee to help him with some things (teaching newly arrived (from another country) family members English and some other work/help for him.  I came to stay with my father in Franklin (Milwaukee), experienced dramas galore, and I eventually stayed with my ex-stepfather for a while, as long as he let me, but it wasn't long.
Without knowing where to go or how to continue surviving, my father insisted I move into a particular apartment in the ghetto of Milwaukee and that he would pay for it for me.  Related to dramas and his effortful initiation of force and other authoritative influences over me, I asked him if I had a choice and he said no.  After having lived there for like six months, everyone that saw the apartment was devastated/shocked at how my father could let me live there.  Anyhow, it was completely putridly disgusting and has greatly affected my consideration that my health issues sparked from living there also because they started shortly after I moved in.  I did not have any health issues just before moving in at all, ever, nada, nothing.

But, even though my health issues started at the same time that I moved into that apartment, that alone does not guarantee or prove that my health issues came from it, and it could be from other things such as distress, but as of yet, that seems quite unlikely or I am not so convinced.  Though, I shall try to keep an open mind. =/


Title: Re: mizerydearia's obnoxious health escapade
Post by: BitcoinPorn on December 26, 2011, 12:32:22 AM
Also, had you been suffering from a lot of stress prior to the onset of symptoms? Stress shuts down immune activity and increases muscle tension and can cause nerve injury. In my case once I stopped worrying about my condition, I finally started to slowly improve. My advice for you if you don't know what it is yet, you should keep journaling, see more doctors, stay calm, and above all, do the activities that relieve your symptoms as much as possible, because they could be the key to eventually eliminating them.

Doctor first but I agree with what BrightAnarchist is saying too.  I think I recall reading situations that may definitely cause stress that would have physical manifestations.  I have personally dealt with issues very related to stress and it causing my body to react in ways that only relate to symptoms of something else that come out of nowhere.   Best of luck mizery


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on December 26, 2011, 12:36:16 AM
Regarding trying the doctor route, I am a bit worried or concerned about it in relation to how costly it will be and especially to the reality that I have no money.  Well.... I could sell my computers and clothes for money, but that seems ineffective or not enough value to be useful for my health or other expenses.  And I don't think I could manage existing nekkid afterwards for too long, especially during this winter.


Title: Re: mizerydearia's obnoxious health escapade
Post by: BrightAnarchist on December 26, 2011, 01:00:32 AM
Regarding trying the doctor route, I am a bit worried or concerned about it in relation to how costly it will be and especially to the reality that I have no money.  Well.... I could sell my computers and clothes for money, but that seems ineffective or not enough value to be useful for my health or other expenses.  And I don't think I could manage existing nekkid afterwards for too long, especially during this winter.

Post your bitcoin address here and maybe we can get some money together for you to go to the doctor. I'll put in 25 btc to start.


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on December 26, 2011, 01:18:15 AM
I appreciate the offer to assist and help, for the moment I will not [yet?] accept any donations or generosities (even from my father, whom I'm afraid to burden any longer also in relation to my continued living expenses) to help in relation to my health.  I would first like to make sure I prepare for an effective and efficient plan of action.  That will happen after I contact some doctors (https://gitorious.org/health-journal/mizerydearia/blobs/master/healthcontacts.wisconsin) and determine how best to proceed.

I do not want to pursue the most frugal of efforts, but I also do not want to waste moneys unnecessarily.  Most especially I do not want to be taken advantage of (by doctors) and find out I owe an incredulously massive amount of money.

I will document all my efforts as part of my journal (https://gitorious.org/health-journal/mizerydearia/trees/master), and also I can report to this thread about my progress.

Also, I definitely want to provide further proof of my situation so that I can acknowledge the reality of this situation of mine being authentic and not evil scammalicious effort.  At this time there is no such reliable proof and everyone should preserve skepticism before considering any generosity, though I appreciate the sentiment.

For now, I have yet to make calls.



On another note, I prepared the "health-journal" repository at gitorious so that other users can have their own health journals using similar git technology.  If anyone is interested in pursuing similar efforts, let me know.  You may contact me at mizerydearia@gmail.com also.


Title: Re: mizerydearia's obnoxious health escapade
Post by: altuin on December 26, 2011, 10:21:30 AM
Go to the doctor once and don't pay the medical bill unless you absolutely have to to get another appointment


Title: Re: mizerydearia's obnoxious health escapade
Post by: BadBear on December 26, 2011, 12:16:56 PM
Go to the doctor once and don't pay the medical bill unless you absolutely have to to get another appointment

Good way to ruin your credit rating. 


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on December 26, 2011, 02:50:38 PM
Though I am not autistic,I found this (https://www.nytimes.com/2011/12/26/us/navigating-love-and-autism.html?_r=1&hp) interesting:

skeptics "saw Asperger’s as an excuse for rudeness — or, worse, a means of pathologizing essentially normal behavior and diverting resources from those who were truly challenged."

and mention it only for the reference to diverting resources (e.g. wealth, time, emotion, etc.) which is impacted by posting of this thread.  You could use those availability of resources to read other posts and pursue other activities.

I may be challenged, but am I truly challenged (as opposed to falsely challenged)?



Also, thanks to link from deego (https://bitcointalk.org/index.php?action=profile;u=16540), and although it is not directly related, this TED talk Dr. Terry Wahls - Minding Your Mitochondria  (http://www.youtube.com/watch?v=KLjgBLwH3Wc) is interesting: "Without your mitochondria you would be no larger than bacteria."

In the talk there is reference to "which compounds body cells can manufacture and which are necessary to consume in order for reactions to happen properly" and also that Terry Wahls has learned that she needs B Vitamins, Sulfur and Antioxidants for her mitochondria to thrive.

I have yet to pursue more activity in regards to preserving and maintaining my health relative to those and other nutrients, but I have prepared an introduction into doing just that as can be seen with "nutrient levels" here (https://gitorious.org/health-journal/mizerydearia/blobs/master/infos).  Perhaps with a blood test or some other sort of test I can have factual informations relating to those nutrients that I can reference as part of my journal and help me to determine what I need to improve.  I have yet to determine or understand how to proceed with obtaining these informations/data.

"And then it occurred to me, that I should get my long list of nutrients from food, that if I did that, I would probably get hundreds, maybe thousands of other compounds that science had yet to name and identify, but would be helpful to my brain and my mytochondria"

"But I didn't know where they were in the food supply.  And neither did the medical techs nor the food science techs with whom I consulted, but the Internet (http://encyclopediadramatica.ch/Internet) did"

"The Hunter-Gatherer diet has more nutrition than the American Heart Association diet, more nutrition than the American Diabetes Assocation diet and more nutrition than the USDA Food Pyramid diet."



It's interesting that even though my family which are also considerately understanding of health (or so I would believe considering some of their occupations relative to health industry) still are quite abusive with health relative to food choices.  For example during an encounter this year of bringing to their home (where I weas at the time) fast foods and offering some to me which I declined, it had triggered them to become ragingly mad (why u no eat these which we bring for you?).  So, while it is convenient to consider focusing on healthier prospects for all of humanity, there is still a lot of familial and societal opposition that continues to support the thrivingness that is the fast food (and other related) industries including poor selection of foods at grocery/food stores and even poor selection of vegetables, fruits, meats (e.g. monsanto, or cows, pigs, etc fed corn-based diets in which the meats packaged and sold from said cows, and wtf about meat glue? or this (http://www.youtube.com/watch?v=FEMbWn6ClxM&feature=related) O_x ...).

Regarding the comparison of hunter gatherer diets to other diets from the american versions of associations/organizations , it seems that there is a concerted effort to better establish a lesser healthy individual by distributing and propagating such informations (the diets) labeled or branded with their seemingly friendly names and eye candy logos and other imagery which may naturally (or psychologically?) entice humans to participate and rely on such informations and influence and encourage them to preserve and maintain their health accordingly, only to fall victim to pursuing the diets and result with inadequate health and strength to abstain from the need to pursue medical or health expenses relative to the diets.  Anyhow, I look forward to completely ignoring informations from all such organizations as well as the related human peoples behind them as well as the many humans that are not behind those organizations but also share the same distribution of informations, feelings and other efforts to help and instead pave my own way (of course, with some help, but that of which I choose as opposed to that which is suggested to me (especially by doctors) that I am not convinced of).  And, related to help and as part of my journal, I am and will be providing full disclosure of everything (soon I will even start a journal of my food diet also) so that the reality of which all the things related to my humanness can be observed and evaluated in relation to my health.

Again, to some, this effort of mine may seem quite obnoxious and obsessive compulsive, but, especially with consideration of the corruption of industries and related misinformations as well as the likeliness that I am not all-knowing (like phantomcircuit) and make mistakes, I prefer to emphasize a public full documentation of everything so that in the case I do make a mistake (such as accepting or pursuing something relative to misinformation or other corruptions), that at least it can be recognized more clearly as per the documentation/journalistic approach in that my efforts are revealed to everyone and not just doctors or other 'professionals' that ask.  We are all professionals, whether professionally professional, amateurishly professional, unprofessionally professional, etc.  ^_^


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on January 26, 2012, 01:31:59 PM
That study seems quite useful as yet another reiteration to resume consideration towards the patients each having psychological disorders as opposed to actual parasites, but does offer the reality for which investigations were limited such as with "There was no sign of an environmental cause, either, although researchers did not go to each person's house to look around.."

added: But even without the effort to look into each person's home, that is not so necessary, especially considering that whereever I go, whereever I live, the sensations continue.  So, it is not necessary to look into my home environments.  It is more helpful to look at me, to test me, test, study and investigate my hairs, blood, whatever.

As a victim of these very experiences that began a year ago, and the reality of which I know and trust myself (as do practically all people), I shall continue to strive fighting for my freedom to end these sensations so they do not occur anymore (whether they are parasitic or psychological), for it is the mere sensations that are disruptive towards me, and that is my greatest concern, to end them.

And in the case that even with much influence to convince all affected patients (and the rest of the world) that these issues are psychological (as per influence from such 'studies' referenced in the article), what then?  Then effort must be pursued to train the human existence to establish thought processes that do not trigger the result of the sensation felt, as with any other psychological disorder that requires the existence to take mental action whether at their own abilities (which are unlikely) or with the aid of medicines produced within the medical industry that do not curse or destroy the thoughts, but merely allow the patient to subside to a weakened mentality so as to not trigger thought processes to occur, or something else entirely, I'm not entirely sure.  I'm not familiar so much with the medicines relative to psychological disorders.

However, I still strongly believe that my issue is not psychological.  Even with the reality that I see physical events or occurrences that seem to represent a kind of fungal, bacterial or other parasitical existence, it is also easy to include such experiences as per psychological evaluation and consideration as well as to dilute the events with influence suggesting that as per the psychological impairment of myself, that the sights I saw were self-induced or self-inflicted.

To me, with the conscience, understanding and perception that I have as per my experiences, I truly feel that still I suffer something parasitic.  I have seen with my own eyes while holding a strand of hair almost twenty-four inches before them, the tiniest of things clinging upon the strand.  To the touch of my fingers, they did not fall off the strand as I brushed them gently over the span of the hair.  In each occurrence (so far four) of these experiences, the specks of whatever (parasites?) dissolved before my eyes in a minute, and what I had initially felt while brushing my fingers over the strand of hair, was no longer.  However, on the latest such occasion or encounter of the phenomena, I saw what was more disturbingly shocking to me, that helped to strengthen my reality of which this health issue is parasitic and not psychological (again, it is easy to influence anyone that this is still psychological and that I was seeing things or even that I had made up the story in light of self-induced or self-inflicted experiences).  What I saw was another speck of whatever that had dissolved and just as it did, the strand of hair from where the speck was to the rest of the length (about two or three inches) had instantly bent upwards as it cracked.  And what was left afterwards was yet another thinned spot in the strand of hair.  Even before that very experience, for well over half a year I have endured the process of which my hair has become increasingly damaged and started with the first occurences of these thinning spots in which each strand had only one, and most of my strands of hair were unaffected.  Now ALL OF MY STRANDS are so very damaged to the point of more devastating erosion and decay.  And this is only my hair, but I feel it is the same infestation of parasites that has compromised my hair that is also compromising my skin and causing the sensations that I feel upon my skin.  I cannot feel sensations in my hair.  My hairs do not have nerves.  But I can feel on my scalp, and I oftentimes feel sensations upon top of my head, side of my head, neck, etc and everywhere else on my body even recently including a few now internal that I cannot reach to relieve touchingly or scratchingly.

I am under the greatest of influences and considerations that my health issue is NOT psychological and that it is parasitic and I will not give up or be influenced so easily and instead prepare myself usefully to help establish precedent of which the health issue may be realized or discovered to be parasitical.  I have yet to see a psychiatrist or other doctor other than a therapist, but even my one therapist has on several occasions expressed that she believes my issue is not psychological.  I shall not give up.  I shall survive and continue to strive to help contribute towards discovering exactly what it is that is affecting me.  I continue to grow my hair and let it endure damage, and perhaps as it continues to decay and become damaged, perhaps it may be useful to study and test to determine if there are parasites infesting my hair and body.

Also, thanks for sharing the article!  Perhaps I shall contact some of the people named in the article and share with them my public journal and effort.

Also, I referenced the article and my response to my therapist.  I shall not add it to the journal, but instead offer reference to this thread as part of it.


Title: Re: mizerydearia's obnoxious health escapade
Post by: BrightAnarchist on January 26, 2012, 04:00:25 PM
Have you been tested for parasites? There are objective tests yu can get done for this, and if found, it's pretty easy for doctors to kill them with an IV of drugs.


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on January 26, 2012, 11:15:21 PM
Have you been tested for parasites? There are objective tests yu can get done for this, and if found, it's pretty easy for doctors to kill them with an IV of drugs.

I have not yet even seen a medical doctor.  I shall eventually.


Title: Re: mizerydearia's obnoxious health escapade
Post by: bb113 on January 26, 2012, 11:50:48 PM
Ok, mizerydearia. I'm no MD, but  I know more than average about biology. I research neuroscience, so skin/parasites are not my expertise. I say that because, as someone mentioned earlier, if you go to a psychiatrist you will get a psychiatric solution... go to a dermatologist and you'll get a dermatological answer. Likewise, you will tend to get a neurological explanation from me.

First thing is you are way, way too verbose when you describe this stuff. You need to be more concise so people don't have to wade through paragraphs like this to see if you have included relevant info:

Quote
Again, to some, this effort of mine may seem quite obnoxious and obsessive compulsive, but, especially with consideration of the corruption of industries and related misinformations as well as the likeliness that I am not all-knowing (like phantomcircuit) and make mistakes, I prefer to emphasize a public full documentation of everything so that in the case I do make a mistake (such as accepting or pursuing something relative to misinformation or other corruptions), that at least it can be recognized more clearly as per the documentation/journalistic approach in that my efforts are revealed to everyone and not just doctors or other 'professionals' that ask.  We are all professionals, whether professionally professional, amateurishly professional, unprofessionally professional, etc.  ^_^

The next thing is that you seem very emotional, and living in an infested apartment (especially your initial experience opening the fridge) sounds like it was very traumatizing. I don't mean to dismiss whats going on with you by calling it psychological, but you need to understand why a doctor may think you would be prone to that type of thing. You also need to understand there are many quacks out there ready to take advantage of you by selling you placebos. On the other hand, the placebo effect can be very strong when it comes to skin sensations, etc.

I am pretty sure everyone has experienced the phantom cell phone in their pocket, or phantom bugs crawling on their skin if crawling around in a cobwebby attic, etc. This may just be an extreme version of that, a kind of PTSD. I'll ask one question at a time.

1) Are you on any medications (holistic or otherwise)?


Title: Re: mizerydearia's obnoxious health escapade
Post by: bb113 on January 27, 2012, 12:15:14 AM
I just found this, so I will add a few more questions:

Quote
Summary of health defects:

1) Nibble-like sensations endured at variable intervals, frequencies, intensities and locations on what feels like the external surface (but may be triggered internally also) of my skin.
   
2) Damaged hair including strands of hairs from all parts of my body, not only my head.  The damage consists of of dissolved like thinness or missing chunks of thickness one or more times on most strands of hairs.
Unlike the above two defects which are a constant, this third defect comes and goes.  I last experienced it very noticeably early December 2011, though it still persists mildly.

3) Odorous saliva in mouth that is stringy and sticky and very noticeable upon awakening after sleeping feeling the need to spit a massive glop of smelly yuck that stringily dangles droolingly from my mouth due to not separating so easily as salival naturally does.  The feeling of disgustingness of affected saliva extends down my throat.

1) It appears you tried to quantify the intervals, frequencies, intensities, locations, time of day, etc. Can you put this in a more readable format (I do not understand your timestamp)? Once this is done we can attempt to look for a pattern. Also I am not clear on if these "nibbles" are painful or itchy not.

2) Are you constantly picking at your hair and skin? When you say "strand" are you referring to an actual single strand of hair? Do you mean to say the thickness of an individual strand of hair varies over its length? If so, is it usually thinner near the base? Does this occur in patches of hair, or is it only found in isolated strands.

3) Describe the odor. Also, what is the color of your spit? Do you think you produce an excess amount of saliva? Maybe you can spit into a cup all day and measure the volume.


Title: Re: mizerydearia's obnoxious health escapade
Post by: BrightAnarchist on January 27, 2012, 12:22:23 AM
Have you been tested for parasites? There are objective tests yu can get done for this, and if found, it's pretty easy for doctors to kill them with an IV of drugs.

I have not yet even seen a medical doctor.  I shall eventually.

I would go and do this immediately.


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on January 27, 2012, 12:54:37 AM
1) Are you on any medications (holistic or otherwise)?

2) It appears you tried to quantify the intervals, frequencies, intensities, locations, time of day, etc. Can you put this in a more readable format (I do not understand your timestamp)? Once this is done we can attempt to look for a pattern. Also I am not clear on if these "nibbles" are painful or itchy not.

3) Are you constantly picking at your hair and skin? When you say "strand" are you referring to an actual single strand of hair? Do you mean to say the thickness of an individual strand of hair varies over its length? If so, is it usually thinner near the base? Does this occur in patches of hair, or is it only found in isolated strands.

4) Describe the odor. Also, what is the color of your spit? Do you think you produce an excess amount of saliva? Maybe you can spit into a cup all day and measure the volume.

1) No and I haven't taken any medications in at least half a decade.

2) The timestamp is unix epoch timestamp (https://en.wikipedia.org/wiki/Unix_time).  Maybe see http://www.epochconverter.com/  Also I'll prepare a web based script to auto convert the timestamps and mention it here when finished.  The itchiness is relative to the intensity in which my mind comprehends the contact/sensation as undesirable and triggering of my touching it with my hand, and oftentimes also rubbing or scratching the affected location to relieve a mild itchiness that subsides upon contact, otherwise if left untouched, the itchiness subsides more slowly as with any other itch left untouched.  There is no pain other than the undesirability of the sensation which in itself is mentally or psychologically painful.  Also, though the sensations are not painful, in consideration of physicality, they are minisculy painful in that they affect a reaction from me to touch the affected area, but again, the sensation subsides.  It's been a while since I've had a mosquito bite, but I almost want to use mosquito bites as a comparison, but I'm not entirely certain from lack of experience with mosquitos in the last few years.

3) Yes, 'strand' of hair is what I meant.  I am not currently picking at my skin, however, regarding my hair, even before this health situation, I would periodically run my fingers through my hair especially so as to detangle it.  It is naturally curly and I've been growing it out for three or four years.  Regarding varying thickness.  As the first missing thicknesses became noticeable, each affected strand of hair still possessed most of its thickness (my hair was very thick since birth) and in just a tiny spot on the strand, perhaps the thickness of the sharp tip of a small hair scissors, there was a missing chunk in which the thickness in that spot would be half or less than half the thickness of the hair.  However, from later observations of hair strands, rotating them so I could see all sides of the strand I noticed that the missing thickness was not all the way around, and was only visible at certain angles.  After over half a year of many of my strands becoming affected I noticed that many of the strands were losing much more of the thickness across the length of the hair, but in many cases, not the entire length.  To me, it seems like the erosion or decay of the strands were gradual and started from the location in which the initial chunks of thickness were missing, and then through days, weeks, months, the thickness of the hairs were eaten/dissolved.  Now my hair strands are very thin, but still they are thick enough to exist and grasp sturdily.  However, several of my hairs have also become noticeably elastic or stretchy.  I'm not sure if it is perhaps the insides of the hair that are naturally stretchy and perhaps an outer protective casing/layer of the hair are not stretchy, or if there is some other explanation, but some of my hairs are stretchier than others.  As of now, the thinness of each hair spans across the entirety of each strand.  A few months ago, the thinness and thickness mix of each hair strand was in random locations in each strand, some perhaps near the base or root, some near the tip, some in middle and again, several strands had several gaps of thicknesses and thinnesses, and again over time the length of each span of thinness became longer and longer until now entire strands have lost all of their thickness.  I am not entirely sure, but I may have some of my hair in a baggy from years ago, that I used for a particular art project, and if so, perhaps I can make use of it to compare it to my current hair.  It will be a while before I can confirm if I still have the hair, if it is even useful.  Last part of the question, initially, it was isolated strands, but over time, the isolatedness of strands became not so isolated as eventually most and all of my hairs became affected.  And now, 99-100% of my hairs are affected.  I can't even find a hair that is unaffected to compare to anymore, which makes it difficult to realize the reality of which my hair was thick at one point.  The only truth I have to my hair having been thick is that of my memory and also especially my parents who are most familiar with me.

4)
Quote
<MC1984> next time you wake up in the morning, spit into a glass of water before anything
<MC1984> if it goes stringy and rank you have candida bloom i think


Title: Re: mizerydearia's obnoxious health escapade
Post by: bb113 on January 27, 2012, 01:29:26 AM
Ok, more questions before I forget them:

Are you also losing weight?

How old are you, if you don't mind me asking?

How often do you bathe/shower? What kind of soap and shampoo do you use? Do you know the pH of your water (i.e. do you have "hard water")?


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on January 27, 2012, 01:37:59 AM
Q: Are you also losing weight?
A: No, still I weigh ~120-125lbs as I have for the last 10+ years.

Q: How old are you, if you don't mind me asking?
A: 30

Q: How often do you bathe/shower?
A: Until a few months ago, once a day.  Now still mostly once a day, but sometimes I take two or more baths/showers and have up to four times a day.  The reason for such frequency is so as to exist in a place that seems peaceful from the sensations, and during my additional baths/showers each day, I generally just relax in water and do not use shampoo/conditioner/soap as I'm already clean from a previous bath/shower.

Q: What kind of soap and shampoo do you use?
A: The same kinds I have for most of my life.  Currently and for several years I've been using TRESemmé (https://en.wikipedia.org/wiki/TRESemm%C3%A9) products: particularly shampoo and conditioner.  And for the last 5-20 years I've been using Dove soap (https://en.wikipedia.org/wiki/Dove_%28toiletries%29).

Q: Do you know the pH of your water (i.e. do you have "hard water")?
A: I don't, but the water in this home environment that I am currently living in has hard water.  I have lived in this home many times throughout the last 15 years and never had a problem relative to the water.  This health issue began at another living space, but I am not sure of the pH level of the water there.

Can you put this in a more readable format (I do not understand your timestamp)? Once this is done we can attempt to look for a pattern.
From https://gitorious.org/health-journal/mizerydearia/trees/master
http://65.30.35.48/nibbles.2011.11.21.php
http://65.30.35.48/nibbles.2011.12.11.php
http://65.30.35.48/nibbles.2011.12.12.php


Title: Re: mizerydearia's obnoxious health escapade
Post by: bb113 on January 27, 2012, 02:33:12 AM
So, for what its worth, right now here is my hypothesis:

You are a naturally emotional person, and have an especially strong reaction to stress. You were put in a very stressful environment for a sustained period, associated with insects and infestation. It is well known that there is a strong interplay between the brain, stress hormones, and the immune system. The skin and your mucus membranes are the main barrier between your body and the outside world, so a properly functioning immune system is crucial to skin health. You can look up "PTSD and skin problems" to see that it is a common complaint.

So stress -> aberrant immune system -> the various factors responsible for keeping your skin and and mucus membranes functioning properly are out of balance

This is leading to dried out, sensitive, inflamed skin. This can lead to the formation of various localized "autoimmune" reactions, etc which is leading to the random blistering and acne. Because it is dysregulated, your immune system is probably also mounting an excessive attack on the normal bacteria that lives on it and in your pores. Our skin is also constantly repairing and replenishing itself, this process is disturbed in your case due to the above mentioned factors. So you may be more easily injured than most people. So the blisters on your fingers, etc may be from you accidentally hurting yourself slightly without realizing it. The skin is then failing to repair itself properly. Perhaps you also have a thinner outer layer of skin, so your cutaneous receptors (touch sensors) are abnormally near the outside world, leading to extra sensitivity. If you are touching/picking at your skin more than usual it will also contribute to the inflammation in a process somewhat similar to the formation of pressure sores.

Your mind is trying to make sense of these sensations by relating them to your previously mentioned stressful experience with insects and filth. Normally our brains will desensitize to such stimuli over time, but your strong emotional reaction pushes it into your consciousness, so signals that should be filtered out by your thalamus (the sensory relay, or switchboard of your brain) are making it through.

Further, your skin is also responsible for producing your hair and secreting oils that wick up the strand to protect it. Your skin is inflamed so it is not producing enough oil to protect your hair. You may be bathing more than the usual person as a response to the above problems, because it provides you with temporary relief. Unfortunately this is having the unintended side effect of further drying out your skin and hair. This unprotected hair is unusually susceptible to high pH water and soap/detergents found in shampoo. The bonds that holds the main component of your hair (keratin) together are called disulphide bonds. These are broken by high pH solutions. An example of this is the straight, thinner hair that results from perms.

You also probably have some social anxiety which is feeding back on the stress response in a vicious cycle.

So stress -> aberrant immune system -> inflamed skin and mucus membranes -> unusual sensations + unprotected hair -> perception of a parasite infestation and weak, thinning hair.

The root cause here is stress... so anti-anxiety, anti-depression meds may help. But these are usually expensive and have their own side effects. Obviously there are also non-pharmaceutical therapies you can try such as cognitive behavioral therapy, meditation, exercise, a fulfilling  job or hobby, etc.

The second factor is inflammation. Anti-inflammatory medications may help, however, these also come with their own side effects. A healthy diet and exercise will also often help to reduce hyperinflammation.

You can keep your skin from drying out by covering it with a layer of oil, such as found in lotions. However, since it may already be inflamed I would worry somewhat about developing a reaction to the lotion. Likewise with using conditioner on your hair. You can also try getting a water softening shower head.

I don't expect your problem is due to an actual parasite or anything like that, but on the outside chance it is you would be advised to do as BrightAnarchist says and go to an actual doctor. Really you should go to a doctor no matter what because it is clear you are having problems, whether psychological or not.


Title: Re: mizerydearia's obnoxious health escapade
Post by: bb113 on January 27, 2012, 02:42:39 AM
I want to make clear that I think the above is only an hypothesis. It is a logical explanation, but the truth can only be figured out by testing it. I personally think the proponents of sub-clinical candidiasis are full of shit because they do not acknowledge that. Also my brother was into that and showed me a video of one of the bigshot proponents and he claimed to show "yeast in the blood" when I could clearly see it as an air bubble caught in between the slide and the coverslip. There were other scammy aspects to it as well. As you can see from my post above, if you know a little about biology it is possible to come up with all sorts of logical, sciency sounding narratives.

Go to a doctor, and be prepared to describe to them what is going on concisely. Also, although you are not an expert, you know much more about it than them. Propose various theories such as what I have provided. BUT, keep in mind most doctors are not experts in everything, so do not trust blindly. Think about it like asking directions. If I am lost in an unfamiliar place, I usually ask until at least 3 people agree on which direction to go before trusting it. I would treat a doctors recommendation the same way.


Title: Re: mizerydearia's obnoxious health escapade
Post by: bb113 on January 27, 2012, 02:57:08 AM
Oh yea, please go to an actual M.D.. Do not rely on chiropractors, an O.D., or other types of naturalistic or homeopathic "healers". While some of them may be onto something, the vast majority are either ignorant or scam artists. One last thing, I would also suggest setting a goal of getting yourself into a mental and physical state that enables you to get laid. Lots of girls like weird shit, you'd be surprised.


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on January 27, 2012, 03:11:14 AM
Also, I just want to add that some of the nibbles feel like something is flying and bumping into me, and that has been the case since the very first of sensations and the reason why I thought they were bugs (also because I saw bugs, but never saw them on me).

Thanks for this (https://bitcointalk.org/index.php?topic=55565.msg715757#msg715757)!


Title: Re: mizerydearia's obnoxious health escapade
Post by: bb113 on January 27, 2012, 03:20:51 AM
You may be more motivated than me... if you put this into an excel file, and develop some coding system for body region (1=thumb, 2= thigh, etc) I will search for patterns.

From https://gitorious.org/health-journal/mizerydearia/trees/master
http://65.30.35.48/nibbles.2011.11.21.php
http://65.30.35.48/nibbles.2011.12.11.php
http://65.30.35.48/nibbles.2011.12.12.php


Also, I just want to add that some of the nibbles feel like something is flying and bumping into me, and that has been the case since the very first of sensations and the reason why I thought they were bugs (also because I saw bugs, but never saw them on me).

Thanks for this (https://bitcointalk.org/index.php?topic=55565.msg715757#msg715757)!

The place in your skin where hair is generated (the hair follicles) are innervated. If you are extra sensitive to your hair moving about due to a breeze, etc... or even if your signal to noise ratio is very low, it would explain these sensations.


Title: Re: mizerydearia's obnoxious health escapade
Post by: LoupGaroux on January 27, 2012, 04:25:25 AM
A tangential thought... given the conditions that you described at the apartment where these symptoms first presented themselves, you might consider getting the services of a Legal Aid (pro bono/free) attorney to work with you on a case against the slumlord. And possibly your father for Adult Abuse. Anyone maintaining a "living" situation like that is guilty of a number of crimes, and if your father forced you against your better judgement and will to live there, he may also have some liability. That might help with any costs associated with getting good quality medical care. You might also want to check with the Mayo Clinic in Rochester, MN. It is probably the best medical facility in the US, and they do not dismiss patients with vague claims of psychological issues, they work with you whatever the reason.

You should also present you thoughts to your local Health officials, if the root cause is environmental, and is linked to the apartment, they can bring significant resources to bear on getting action to investigate the building, to possibly condemn the building if it is a hazard, and directing you to care.

Good luck.


Title: Re: mizerydearia's obnoxious health escapade
Post by: bb113 on January 27, 2012, 02:33:27 PM
I just realized I assumed mizerydearia is a straight male for some reason. Sorry if I got that wrong.


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on January 29, 2012, 03:34:45 PM
I just realized I assumed mizerydearia is a straight male for some reason. Sorry if I got that wrong.

I'm not so sure what I (http://imgur.com/a/tEZVs) am


Title: Re: mizerydearia's obnoxious health escapade
Post by: FlipPro on January 29, 2012, 04:52:20 PM
I just realized I assumed mizerydearia is a straight male for some reason. Sorry if I got that wrong.

I'm not so sure what I (http://imgur.com/a/tEZVs) am
Have you tried O-T-C anti fungal medication?

If you have does this help the itching/biting at all?

I to have suffered from chronic itching, so I know where you are coming from.

Also you might want to try gold-bond medicated lotion, 2-3 times a day. Your skin might just be damaged/not enough moisture.

Nonetheless you need to go see a good dermatologist, Internet forums will never get you the help you need.

Will donate some BTC to help out.


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on February 24, 2012, 12:07:59 AM
I updated my journal (https://gitorious.org/health-journal/mizerydearia/trees/master) with a new entry and some resources for visit to a psychiatric crisis walk-in center today and other things.  My therapist referred me to go there this last Tuesday.  I was prescribed Paroxetine Hydrochloride for depression and Risperidone for mental/mood disorder, though the doctor specifically indicated that the latter medicine was for the nibble sensations.  O_O  I feel as if he did not understand that I wanted to be treated for the nibbling sensations and not for mental or psychological concerns.

https://gitorious.org/health-journal/mizerydearia/blobs/raw/770eb99119afbaa04a81e3670b57a19da4ce06d0/resources/2012.02.23.Milwaukee%20County%20Behavioral%20Health%20Psychiatric%20Crisis%20Walk-In/meds.jpg

see more pics and stuff in resources (https://gitorious.org/health-journal/mizerydearia/trees/master/resources)

Researching Paroxetine (https://en.wikipedia.org/wiki/Paroxetine), I see:

Quote
General side effects are mostly present during the first 1–4 weeks while the body acquires a tolerance to the drug, although once this happens, withdrawal can cause a rebound effect with symptoms re-emerging in an exaggerated form for very long periods of time.

Quote
Many psychoactive medications can cause withdrawal symptoms upon discontinuation from administration.

Quote
Evidence has shown that paroxetine has among the highest incidence rates and severity of withdrawal syndrome of any medication of its class.

Quote
Common withdrawal symptoms for paroxetine include nausea, dizziness, lightheadedness and vertigo; insomnia, nightmares and vivid dreams; feelings of electricity in the body, as well as crying and anxiety.

Quote
Paroxetine prescribing information posted at GlaxoSmithKline now acknowledges the occurrence of a discontinuation syndrome, including serious discontinuation symptoms.

This scares me and reinforces that which I despise medication.  I do not trust taking that particular medication.

Researching Risperidone (https://en.wikipedia.org/wiki/Risperidone) I see:

that it seems okay mostly.  Is there anything that I should be concerned about?  I am still hesitant to start taking it though. =/  My concern is more relative to the nibble sensations than that of depression or mental disorder.  I would rather first cure/resolve these nibbling sensations.


Title: Re: mizerydearia's obnoxious health escapade
Post by: notme on February 24, 2012, 12:34:02 AM
I would advise getting a second opinion from DrG.
https://bitcointalk.org/index.php?topic=64287.0

He may be able to help clear up any confusion, and he accepts BTC donations for his medical mission.


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on February 24, 2012, 09:51:57 PM
One of my previous housemates responded to me:

Quote
i just read through the whole thread at https://bitcointalk.org/index.php?topic=55565.40 and i kept thinking about a particular thing. this is something i've thought about before in conjunction with your lifestyle when you lived with me. i think the products you use and the frequency with which you shower might be very detrimental to you.
 
sodium lauryl sulfates and other chemicals are in the hair and body products that you use. just look up sodium lauryl sulfates and there's a huge amount of information about their harmfulness. showering/bathing every day may not show symptoms for awhile, but there is a cumulative damage that goes on, and perhaps your immune system was strong enough to keep it from your awareness until the stress of the apartment your father made you live in. the experience in that apartment could have been a trigger for you to become hyper-aware of the detriment caused by sodium lauryl sulfates (and other chemicals in personal cleansing products) while at the same time weakening your body and causing all the symptoms to become more severe, and then your increased bathing in response will continue to further dry and strip your skin and hair of essential oils and even destroy the cells.
 
the description you gave of your hair strands falling apart is pretty much the same as what i used to experience when i was bleaching my hair and dying it green and then swimming laps in the lawrence university pool and not always showering afterwards to wash the chlorine off myself. i had never had any problems with dry skin before in my life and i really didn't care about damaging my hair. i developed guttate psoriasis after i graduated because i was going swimming every single day and the chlorine was damaging my skin to the point that my immune system was mistaking damaged skin cells for pathogens. first i started to shower more diligently after swimming, to remove the chlorine, but that didn't help and it made my skin drier and made the psoriasis worse. i tried using lotions and they made it worse. i had to go to new york to perform in rocky horror picture show and i was very concerned about what looked like a terrible rash all over my skin when i had to perform nearly naked in front of thousands of people, so i saw a doctor and got a cream for the psoriasis before i went to new york, and stopped swimming for about a week to give the cream a chance to fix my skin. the cream worked. i went to new york and it was all good. i came back and started swimming again and the psoriasis came back. then it got cold and i stopped swimming and i used some more of my cream because the winter was giving me dry skin in a way that it never had before, but by the spring of 2005 the psoriasis was under control and my swimming habits were sadly interrupted and i never did get back into that routine.
 
anyways, the whole time i'd been swimming and bleaching/dying my hair, i was well aware of how this was killing it. and it was pretty much just like you described your own hair. i chopped all my hair off a year or so later, and eventually shaved most of my head as you know. once i started letting my hair grow out again, it was thick and lush and undamaged like when i was a child. it was beautiful. i always knew i could do that, so i never worried about what i was doing to my hair. play with it, kill it, it'll just grow back.
 
but the psoriasis on my skin prompted me to do a lot of research into chemicals and their impact, and i've done a lot of experiments and noticed a significant difference between using commercial products versus using super-expensive custom-made all-natural products. i couldn't really afford the super expensive products, so i opted to shower and wash my hair much less frequently, to conserve the products i'd purchased.  i had already learned during college that if i go for a month or so without bathing, once my hair got through the greasy phase, it was suddenly wonderful, as though it was conditioned, even though it wasn't even washed. but when i was trying to conserve my expensive shampoo and body wash stuff, i discovered that simply decreasing my showering to 2 or 3 times a week instead of daily, had visible results of better skin and hair within a couple weeks, and greatly greatly reduced dry skin. ever since the psoriasis in 2004, i'd had terrible problems with dry skin in the winter, itchiness that was so bad i'd scratch until i bled sometimes. but after i stopped showering daily, i haven't had that kind of dry skin ever since.
 
my situation is different from yours in very significant regards, but i think certain similarities are notable and will hopefully give you more insight into your own condition and help you figure out how to heal from it.
 
another thing i thought of while reading that forum thread was when someone mentioned vitamin B and other nutritional deficiencies. i know people who have had anorexia-related nutritional deficiencies who had similar symptoms as yours, but their experiences were related to me vaguely so i don't have much to share on this topic, other than that this is definitely something to look into. i personally have varying degrees of B and D vitamin deficiencies from time to time because of my almost meatless diet and my alcoholism, and one prominent side effect of this is that my skin bruises and tears and scars very easily and takes a long time to heal. i've never had particularly sensitive skin, but i can imagine how easily-damaged and hyper-sensitive could arise from the same sort of phenomenon.

So, I shall try to take showers less, try to not shower daily, and also effortfully try not to take baths.  It will be very difficult for me especially as I awaken and every time I do after a long duration of sleep I feel so dirty and grimy and my eyes, I need to rinse off the muck off and around my eyes, and my hair, I must....  no, I can't.  Even as I only bathe and shower many times and do not use any chemicals, perhaps it is merely the water, even the hard water that is here, that is dissolving my hair and my skin.  So, I shall try to shower less.

Again, this (https://bitcointalk.org/index.php?topic=55565.msg715757#msg715757) post is relevant.


Title: Re: mizerydearia's obnoxious health escapade
Post by: bb113 on February 25, 2012, 06:56:57 AM
Habits are hard to break. It takes about two weeks for a scratch to heal, same for your brain to adjust. However, that piece of skin and your brain have been forever changed by the experience, and are no longer as they were. It will be similar to quitting smoking. I would recommend that when you feel like smoking... crap I mean showering, you do something that is even more addictive than showering has become for you...


Title: Re: mizerydearia's obnoxious health escapade
Post by: bb113 on February 26, 2012, 07:04:18 AM
One of my previous housemates responded to me:

So, I shall try to take showers less, try to not shower daily, and also effortfully try not to take baths.  It will be very difficult for me especially as I awaken and every time I do after a long duration of sleep I feel so dirty and grimy and my eyes, I need to rinse off the muck off and around my eyes, and my hair, I must....  no, I can't.  Even as I only bathe and shower many times and do not use any chemicals, perhaps it is merely the water, even the hard water that is here, that is dissolving my hair and my skin.  So, I shall try to shower less.

Again, this (https://bitcointalk.org/index.php?topic=55565.msg715757#msg715757) post is relevant.

With regards to feeling grimy... this is a psychological thing. Some people even like a grimy feeling. The only reason most people wash so often is that we live, work indoors and BO can be annoying to others around you. It is not "natural" to wash so often, but then neither is spending most of your time in an indoor climate controlled environment. As to the muck around your eyes... Do you wear contacts, or have in the past? Do you sleep with a fan on in the room?




Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on March 10, 2012, 10:11:13 PM
Hi Bitcoin community.

I am just chiming in to say that I will be relocating to Pittsburgh, Pennsylvania shortly after April 5th as part of some kind of effort so that I can experiment with a lifestyle where I do not live in the same living space all day every day and especially one where I can actively be outdoors most frequently, constantly moving, perhaps getting away from the idea of parasites chasing after me, or rather, thriving whereever I am.

Again, for the case that my health issue is psychological, then me experimentation/evaluation may portray my experimentation as ineffective or unresolvable.

Though, in the case it is parasitical, perhaps I may observe some kind of escape, but also, still I consider that in the case it is parasitical, I may be host to them in which they thrive and propagate from me and thus, I will never get rid of them.

Also, there is another reason why I desire to go to Pittsburgh.  It is to be near someone that is very inspirational and motivational for me to continue where I am becoming very desperately overwhelmed and emotionally distressed, and I wish to lead a more outdoor lifestyle, but I am seemingly unable to do so here, living in this living space where I am accustomed to, and unable to establish new patterns or new habits.  

I will still be around periodically to update my journal and also perhaps even I can contribute effort to resolve witcoin conflict (https://bitcointalk.org/index.php?topic=68167.msg794536#msg794536), and I really would like to.

Also, if anyone lives in or is nearby Pittsburgh, perhaps I can be available to introduce myself.  And then the bitcoin community can capture me and hold me hostage until I resolve the things I've been neglecting (e.g. witcoin), but preferably or ideally I would like to be held hostage in a mobile fashion, one where I can escape traumatizing nibbling sensations from staying in the same place for too long.

Also, of the medication that I was prescribed, I wish to postpone consuming them until after I endure experimenting as mentioned above.  They do not expire until next year, so I should still have the opportunity to resort to psychological/mental treatment/medication in the case that my experiments/tests/observations do not yield recognition of a biological health issue.

l3estest l2egardedsness,
Miz


Title: Re: mizerydearia's obnoxious health escapade
Post by: BrightAnarchist on March 10, 2012, 10:36:42 PM
Have you looked at this?

http://www.morgellons-research.org/morgellons/morgellons-treatments.htm


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on March 10, 2012, 11:02:39 PM
Have you looked at this?

http://www.morgellons-research.org/morgellons/morgellons-treatments.htm


Yep. Last year I added to https://gitorious.org/health-journal/mizerydearia/blobs/master/infos and https://gitorious.org/health-journal/mizerydearia/blobs/master/links

I do not have "black specks, fibers or pustules" and thus my health issue is not related to Morgellon's

Also, this thread (https://bitcointalk.org/index.php?topic=68167.0) is connected/related.


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on March 12, 2012, 09:29:57 AM

Note: I have not taken the medications yet.

http://www.youtube.com/watch?v=1TwdsYVHjGA

Risperidone is Risperdal (https://en.wikipedia.org/wiki/Risperidone)


Title: Re: mizerydearia's obnoxious health escapade
Post by: bb113 on March 12, 2012, 10:03:31 AM
Just don't start taking them then stop. Follow the schedule the doctor told you once you start. I had a friend start rispiridone (along with some other stuff) and he started getting all paranoid and shit for awhile then it subsided once his brain got used to it. The way these drugs are supposed to work is long-term changing the levels of your neurotransmitters and receptors, not right away. No personal experience with it though.


Title: Re: mizerydearia's obnoxious health escapade
Post by: mizerydearia on March 12, 2012, 01:02:01 PM
Just don't start taking them then stop. Follow the schedule the doctor told you once you start. I had a friend start rispiridone (along with some other stuff) and he started getting all paranoid and shit for awhile then it subsided once his brain got used to it. The way these drugs are supposed to work is long-term changing the levels of your neurotransmitters and receptors, not right away. No personal experience with it though.

I'm not so sure.  I've been watching way too many youtube vids from keyword: "risperidone" or "risperdal" and I am even more traumatized now watching them portraying the experiences of others as they had endured for years of taking the medication.  But they are fake, right?  I should not believe things I see on the Internet.  Doctors know what they are doing.  There is no such thing as evilness or corruption.  us dollar is good.  bitcoin is bad.  I have found you can find happiness in slavery.

But still, I know what I must do relative to my own rationality and competency that I strive to consistently maintain (besides the sarcasm as shown above).  I trust myself.  And especially I have a health journal for these very things that I fear, uncertainty of the health industry or the medical industry.  I shall still continue to actively participate, but also I will still document things.  As I arrive in Pittsburgh, I would like to begin the habit of voice recording all interactions with doctors and others and provide text transcripts of everything so that I can provide even more account of many important things and efforts that progress.  There have been many key things that have been discussed between my therapist and myself that are forever lost in time.  I would like to prevent that in the future.

Again, as much as this is a battle for myself, it's also a battle for everyone else that has similar health issues.  I need more hit points to sustain this battle.  Does anyone have any healing potions?

At least I keep telling myself that, ever since someone suggested to start a journal.