He can't get a heart transplant because he's autistic really?

[Maidak]

http://www.change.org/petitions/help-my-autistic-son-get-a-life-saving-heart-transplant?utm_campaign=share_button_mobile&utm_medium=facebook&utm_source=share_petition&utm_term=9098309

I signed this petition just because after reading this its just a horrible way to be denied surgery. I'd like to see what this community thinks of it. And if you agree sign!

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[repentance]

There's a horrible lack of information on that petition.  It doesn't even specify his particular heart condition and why transplant surgery is his only option.  Nor does it outline the specific reasons why listing for transplant was denied (the reason would have been more complex than "because he's autistic).  It doesn't mention what actions have been taken under anti-discrimination law, either.

If people aren't going to put effort into the petitions they create - and petitions are generally little more than a feel good thing which change nothing - they can't expect much of a response.

Give people all the relevant information and there's a good likelihood that people will pressure the hospital which made the decision about not listing him for transplant.  A senate petition will go nowhere when it lacks any concrete information.

[TruSteve84]

There's a horrible lack of information on that petition.  It doesn't even specify his particular heart condition and why transplant surgery is his only option.  Nor does it outline the specific reasons why listing for transplant was denied (the reason would have been more complex than "because he's autistic).  It doesn't mention what actions have been taken under anti-discrimination law, either.

If people aren't going to put effort into the petitions they create - and petitions are generally little more than a feel good thing which change nothing - they can't expect much of a response.

Give people all the relevant information and there's a good likelihood that people will pressure the hospital which made the decision about not listing him for transplant.  A senate petition will go nowhere when it lacks any concrete information.

QFT. As I read this i felt i needed more details to become involved..

[Matthew N. Wright]

http://www.change.org/petitions/help-my-autistic-son-get-a-life-saving-heart-transplant?utm_campaign=share_button_mobile&utm_medium=facebook&utm_source=share_petition&utm_term=9098309

I signed this petition just because after reading this its just a horrible way to be denied surgery. I'd like to see what this community thinks of it. And if you agree sign!

Interesting that he has a book he's trying to sell and it magically gets sold out in time with this petition 

[BitBlitz]

What would be better than signing one petition?  Be an organ donor.  If there were enough donors, nobody would need to to decide who is 'fit enough' for a lifesaving transplant and who is not.  'nuff said.

[420]

people pay for their medical insurance, shoulda researched their insurance if they did not before starting to pay for it

[drakahn]

My first thought is "Would the quality of life and chance of survival a heart transplant would give him be better than everyone else on the list for a heart?"

"he could not name all his medications" - Meaning he would always need someone else, and should that someone else make a mistake with medicine he needs to keep the replacement heart healthy, then the transplant is a waste.

"he has never smoked or drank alcohol" - So then something else cause his condition? will it happen with a new heart?

Perhaps he isn't on the list simply because he would always be on the bottom of it

I'm not a doctor, but I've seen every episode of House, so obviously I know what I am talking about :p

[420]

My first thought is "Would the quality of life and chance of survival a heart transplant would give him be better than everyone else on the list for a heart?"

"he could not name all his medications" - Meaning he would always need someone else, and should that someone else make a mistake with medicine he needs to keep the replacement heart healthy, then the transplant is a waste.

"he has never smoked or drank alcohol" - So then something else cause his condition? will it happen with a new heart?

Perhaps he isn't on the list simply because he would always be on the bottom of it

I'm not a doctor, but I've seen every episode of House, so obviously I know what I am talking about :p

so there are prioritis on the list not everyone put at the bottom?

[drakahn]

My first thought is "Would the quality of life and chance of survival a heart transplant would give him be better than everyone else on the list for a heart?"

"he could not name all his medications" - Meaning he would always need someone else, and should that someone else make a mistake with medicine he needs to keep the replacement heart healthy, then the transplant is a waste.

"he has never smoked or drank alcohol" - So then something else cause his condition? will it happen with a new heart?

Perhaps he isn't on the list simply because he would always be on the bottom of it

I'm not a doctor, but I've seen every episode of House, so obviously I know what I am talking about :p

so there are prioritis on the list not everyone put at the bottom?

I did mention I get all my medical knowledge from a mix of US TV Shows and my arse right?

so, sure, there are priorities, an otherwise healthy 18 year old girl with high chances of survival and lots of money would get a heart pretty quickly

[420]

My first thought is "Would the quality of life and chance of survival a heart transplant would give him be better than everyone else on the list for a heart?"

"he could not name all his medications" - Meaning he would always need someone else, and should that someone else make a mistake with medicine he needs to keep the replacement heart healthy, then the transplant is a waste.

"he has never smoked or drank alcohol" - So then something else cause his condition? will it happen with a new heart?

Perhaps he isn't on the list simply because he would always be on the bottom of it

I'm not a doctor, but I've seen every episode of House, so obviously I know what I am talking about :p

so there are prioritis on the list not everyone put at the bottom?

I did mention I get all my medical knowledge from a mix of US TV Shows and my arse right?

so, sure, there are priorities, an otherwise healthy 18 year old girl with high chances of survival and lots of money would get a heart pretty quickly

Too bad there's no opt-in and opt-out for Obamacare

[organofcorti]

there are priorities, an otherwise healthy 18 year old girl with high chances of survival and lots of money would get a heart pretty quickly

She'd win your heart, drakahn?

[drakahn]

there are priorities, an otherwise healthy 18 year old girl with high chances of survival and lots of money would get a heart pretty quickly

She'd win your heart, drakahn?

No, just a matter of potential, A fertile otherwise healthy male works just as well, but if it we're up to me we would already be using cloned hearts, or at least full mechanical hearts.... 3D printed custom hearts... genetically modified baboon hearts.... you know, anything we could make in numbers bigger than we would need, just in case a contagious heart disease pops up and pulls a spanish flu.

And my heart is staying with me until I get my robot body, Anyone know where I can sign up to be the first human test of a digital brain upload?

[420]

there are priorities, an otherwise healthy 18 year old girl with high chances of survival and lots of money would get a heart pretty quickly

She'd win your heart, drakahn?

No, just a matter of potential, A fertile otherwise healthy male works just as well, but if it we're up to me we would already be using cloned hearts, or at least full mechanical hearts.... 3D printed custom hearts... genetically modified baboon hearts.... you know, anything we could make in numbers bigger than we would need, just in case a contagious heart disease pops up and pulls a spanish flu.

And my heart is staying with me until I get my robot body, Anyone know where I can sign up to be the first human test of a digital brain upload?

Ask Sheldon from the Big Bang Theory

[drakahn]

there are priorities, an otherwise healthy 18 year old girl with high chances of survival and lots of money would get a heart pretty quickly

She'd win your heart, drakahn?

No, just a matter of potential, A fertile otherwise healthy male works just as well, but if it we're up to me we would already be using cloned hearts, or at least full mechanical hearts.... 3D printed custom hearts... genetically modified baboon hearts.... you know, anything we could make in numbers bigger than we would need, just in case a contagious heart disease pops up and pulls a spanish flu.

And my heart is staying with me until I get my robot body, Anyone know where I can sign up to be the first human test of a digital brain upload?

Ask Sheldon from the Big Bang Theory

He is a fictional character, I would prefer to like, find out the leading researcher into brain->hard drive transfers is both a bitcoin fanatic, and looking for a test subject.

[legolouman]

My first thought is "Would the quality of life and chance of survival a heart transplant would give him be better than everyone else on the list for a heart?"

"he could not name all his medications" - Meaning he would always need someone else, and should that someone else make a mistake with medicine he needs to keep the replacement heart healthy, then the transplant is a waste.

"he has never smoked or drank alcohol" - So then something else cause his condition? will it happen with a new heart?

Perhaps he isn't on the list simply because he would always be on the bottom of it

I'm not a doctor, but I've seen every episode of House, so obviously I know what I am talking about :p

so there are prioritis on the list not everyone put at the bottom?

I did mention I get all my medical knowledge from a mix of US TV Shows and my arse right?

so, sure, there are priorities, an otherwise healthy 18 year old girl with high chances of survival and lots of money would get a heart pretty quickly

Too bad there's no opt-in and opt-out for Obamacare

From what I understand, you can opt out, however, doing so can result in fees or something. I like the 'end of life' courses you have to take once you hit 65

[MrGaSp]

My first thought is "Would the quality of life and chance of survival a heart transplant would give him be better than everyone else on the list for a heart?"

"he could not name all his medications" - Meaning he would always need someone else, and should that someone else make a mistake with medicine he needs to keep the replacement heart healthy, then the transplant is a waste.

"he has never smoked or drank alcohol" - So then something else cause his condition? will it happen with a new heart?

Perhaps he isn't on the list simply because he would always be on the bottom of it

I'm not a doctor, but I've seen every episode of House, so obviously I know what I am talking about :p

so there are prioritis on the list not everyone put at the bottom?

I did mention I get all my medical knowledge from a mix of US TV Shows and my arse right?

so, sure, there are priorities, an otherwise healthy 18 year old girl with high chances of survival and lots of money would get a heart pretty quickly

Too bad there's no opt-in and opt-out for Obamacare

From what I understand, you can opt out, however, doing so can result in fees or something. I like the 'end of life' courses you have to take once you hit 65

My understanding is if you don't have any medical insurance you pay more taxes, and are then opt in for obamacare

[compro01]

so there are prioritis on the list not everyone put at the bottom?

Yes.  It's called triage.  People who are most likely to benefit from the transplant (e.g. young and otherwise healthy) get a higher priority than people who would likely benefit less.

[Fiyasko]

so there are prioritis on the list not everyone put at the bottom?

Yes.  It's called triage.  People who are most likely to benefit from the transplant (e.g. young and otherwise healthy) get a higher priority than people who would likely benefit less.

Mhmmhmm, And im totally in favor of it, Do i need a new heart? YES. Does someone else need a new one? YES.
So how do we chose who gets it? First come first serve? Healthy Hearted people would get thier first Always, And get new hearts.
Or by Sap Sob story like the autistic person=They always get it.
Or by consideration of lifetime expectancy mixed with the potential ROI that said Heart Needer would provide in comparison to the other Heart Needer.

The third option is called Triage. And is an extremely good system.

Yes you would be right in saying "but that 75yr old man needs a new heart! He'll die without it! Give him a new heart!, Save his life!"
But at the same time, You could be robbing someone like... Tom Cruise? (do people still care about him?) of a new heart (Lets say he's been having Freak heart attacks frequently) just because "the other guy is going to die soon"

Well HOOOLY FUCK PEOPLE, Think about it, If the "He's gonna die without it!" people get new hearts. The hearts are fucking going in the garbage can in comparison.
Why? 75yr old, Maybe another 15yrs of life that, that heart will fuel.
Guy on Triage Priority-> xyz Long Life expectancy based off of a Massive amount of considerations, Age,Wealth,Education,Race,Health and so on.

Really guys. Why give the Damaged, Soon to break car a new Engine, When instead you can replace the Engine on a much newer, Higher performance car.
(23yr old olympian althelte, vs 55yr old Heavily Experianced Hardworking old guy)

Sorry, But i vote in the oppisite direction that this thread desires 

[nedbert9]

While Dick Cheney gets his new heart.


Lol.  This is a hard one.


Can't say I support equal access to life saving efforts involving scarce resources for the severely handicapped compared to otherwise healthy and functional individuals.  At some point the idea of 'everyone deserves everything because we are all human beings,' is unable to hide it's flaws and must give way to reality.

[420]

why not just go highest bidder