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Author Topic: SMA Disease and Babies Need Help  (Read 49 times)
semes
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September 09, 2020, 07:33:19 AM
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As some of you know, there is a very nasty disease called SMA that causes a high rate of death, especially in babies. And thousands of families lose their children or face serious health problems due to this disease.

We know that there are different drugs for Type 1 and Type 2 diseases. However, the cost of a sufficient dose of the drug called ZolgenSma, which is especially necessary for Type 1 patients, is approximately $ 2.5 million. You would appreciate that the families of these babies have a hard time collecting this money. And not only in my country, but in many countries, this drug is not provided by the government. For possible assistance, I would like to share with you the help calls of sick babies in my country that I know. If you see babies in your own countries having this kind of problem, you can PM me to add to the title for help.

https://taplink.cc/savasci.eylul [12.000€ collected]
https://taplink.cc/vja17 [ 66.000€ collected ]
http://behopefordemir-ali.com/ [237.000€ collected, yet %10 ]
https://www.gofundme.com/f/omer-icin-nefes-ol-sma1-pleasebe-breath-for-omer [540.000 collected, yet %25 ]
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semobo
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September 11, 2020, 11:49:05 AM
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If those details in your link is not in english then better stick with your local board because no one can read what has been written on your site and for me it show not secured warning so I don't want to go through all the links.

Helping is a good thing but it is used in the wrong way for scamming people's money so build trust and then ask people for donate to the patient itself.

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October 02, 2020, 07:51:08 AM
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If those details in your link is not in english then better stick with your local board because no one can read what has been written on your site and for me it show not secured warning so I don't want to go through all the links.

Helping is a good thing but it is used in the wrong way for scamming people's money so build trust and then ask people for donate to the patient itself.

I already created a thread in my local community : https://bitcointalk.org/index.php?topic=5274581.msg55160817#msg55160817

I can't understand how I can scam people with this way?
That links which I shared OP, not belong to me. Families are trying to reach a goal so their baby can get a cure for SMA.
It is a gen theraphy and so expensive. I am not involved with anyone. I am just one of the donator.
Anyone if want to help they will or won't. Everyone choice.

I am so unhappy because this babies getting suffer.
Sorry if I distrub anyone.
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