Donations to Provide Funding for Biliary Atresia Surgery for Infant [SUCCESS]

[infofront]

Amount Needed: ₱500,000 (~US$10,500)

Amount Donated So Far: ₿0.24767643 + ₱27,000 + €100 - (€4 + ₱1389 fees)

Total Transferred to Family: ₱624,000 + €100 - (€4 + ₱1429 fees)



The father of this baby is the cousin of a girlfriend-fiance of an OG Bitcoiner who posted in this forum from 2013 to 2018. He has asked me to post this for him. He wrote this entire OP which I am merely posting. Empathy for the plight of the child takes precedence in my decision to post this. I have posted some pictures from the linked GoFundMe page at the bottom of this post.

Also, please see the old, unsuccessful GoGetFunding page: https://gogetfunding.com/help-me-survive-with-biliary-atresia/

Michelle informs me that the baby of her cousin who needs biliary atresia surgery to have any chance of survival. You may remember the photos and the link to their old, unsuccessful GoGetFunding page (https://gogetfunding.com/help-me-survive-with-biliary-atresia/) which I had shared in May. The baby is 11 months old and the longer they delay then the less chance of success (https://www.forerunnershealthcare.com/little-gabriella-of-mexico-gets-her-successful-biliary-atresia-surgery-in-india.html).

The baby is prescreened and passports are ready. The surgery cost is ₱1.6million but a grant will cover ₱1.1million if the parents can provide ₱500,000, which is approximately $11,000.

Can we help her? @infofront could you post a request for donation on Bitcointalk.org with photos and explanation and we will help her put a BTC donation address? I would personally donate $1000+.

Prognosis for the baby may not be good because he is already 11 months old, but it is better to try than to not. Imagine the pain that infant is in. We should at least try to help him.

Readers may track the donations to the Bitcoin address below on the linked block explorer. This OP will be updated occasionally. Any excess donations will compensate for exchange fees, any potential crash in the Bitcoin price before it can be cashed out,* for the parents’ miscellaneous expenses and for ongoing medical care of the baby when he returns from India.

Screen captures of the Coins.ph account they have created have been attached. The sister of the father is managing the Coins.ph account because she can fulfill the KYC requirements.

Parents have promised to provide a followup screen capture of their Coins.ph Bitcoin receiving address after their ID verification has completed. Parents have promised to provide follow-up proof that the funds were deployed for the surgery, including follow-up photos and documentary evidence. These will be posted to this thread at that time, probably in the edited OP also with a thread bump.

Please feel free to post to this thread about your donation if you wish to be acknowledged. God bless you.

Liaison** donation address:  ̶1̶D̶j̶c̶7̶9̶B̶b̶Y̶m̶1̶h̶K̶M̶W̶N̶b̶c̶a̶Y̶5̶A̶N̶3̶Z̶t̶c̶S̶J̶S̶5̶q̶v̶G̶   No more donations requested. Thank you

 (https://www.blockchain.com/btc/address/1Djc79BbYm1hKMWNbcaY5AN3ZtcSJS5qvG) Failed to find an applicable crowdfunding site that accepts ₿.

* Some posit a correction is incoming soon.

** The funds will be forwarded to the Coins.ph Bitcoin address of the parents in tranches to make sure they can cash it out without any hitches. Their new account is currently in the first day of 3 day ID verification process. Caution applied because the parents have no prior experience managing a Bitcoin address.

UPDATE:

@info_front I think we should update the donations thread with a clarification. Also note there were new donations and I transferred another P72,000 to Cherry Ann’s account on this bounce in the BTC price. So P275,000 has been transferred already, of the P500,000 goal. I would like for us to at least donate P400,000. Maybe the family can borrow the remaining P100,000 plus the other P50,000 they will need for miscellaneous expenses.

Here was a recent reply from Cherry Ann clarifying to me the timeline up to now and what will happen when they have the money they need.

VERY IMPORTANT: apparently baby Ethan will receive a liver transplant in India in addition to fixing the blocked biliary ducts. Everything is done simultaneously. So he will not need another liver transplant later in life unless the one he receives deteriorates.

My nephew Nathaniel Sabuero was born September 21 2020 and was born normal with no signs of any possible diseases. Until he reached 3-4weeks when symptoms of BILLARY ATRESIA was slowly appearing. These symptoms includes jaundice or the yellowing of skin and whites of the eyes. A white clay like colored poop was also evident during those weeks. At first we thought it was just normal and will slowly go back to its normal as time goes by. Yet we were alarmed when those didn't change. And so we rushed him to the hospital when he was almost 4 months old. He was diagnosed with Billary Atresia.  A disease in the liver specifically in the bile duct which was not fully developed that won't allow bile to past through that affects the function of it. During those times, the Dr. suggested to cut him open to make sure how severe the condition of his liver and so exploratory surgery and liver transplant was conducted. It was detected that he needs to undergo liver transplant which will serve aa the only cure to make his liver function its normal. Complications will continue to arise if liver transplant won't be done the soonest. Since liver transplant is very expensive and it cost millions which our family couldn't afford, we don't have any choice but to wait until such time we will be able to produce 5hk which is our fiirst step to the liver transplant. Our bill reached almost 3hk the first time he was admitted and so after the first surgery we have decided to discharge him since we can't afford the cost if we continue to stay in the hospital. His medication and maintenance continued at home. Which reached more or less 50k. Until he was admitted the 2nd time because his stomach and testacles keeps on getting bigger due to the liwuid that were accumulated since his liver doesn't function well anymore. And so he undergone another surgery. Hospital bill reached more or less 2hk. He was discharged now with continues medication and maintenance which is quite expensive.  His mother coordinated with parents here in the Philippines who have children with same case. They have a group chat in facebook and that is where she found out the details as to how others was able to go to India and undergone liver transplant. As of the moment, the only amount we are needing is the 500k which will serve as our first step to go to India. Because once we reach India  there will be other sponsors for the actual surgery which may cost more or less 1.5M. On top of the 500k pocket money, we still need to prepare money for our test labs before we go to Manila. Which may cost more or less 20-50k. We did all the best means that we can to produce such amount. We are greatful to all the people who lended a hand despite of these trying times that is happening not just in the Philippines but to the entire world.

[Sthlmbynight]

I hope this works out well. Will the surgery make the baby healthy or are there other problems that might come up?

Anyway, Im new to BTC so no big profits in my pocket just yet. I will revisit this thread when/if BTC makes a huge run.

God bless.

[infofront]

I hope this works out well. Will the surgery make the baby healthy or are there other problems that might come up?

Anyway, Im new to BTC so no big profits in my pocket just yet. I will revisit this thread when/if BTC makes a huge run.

God bless.

Answer from Anonymous Bitcoin OG:

RESPONSE: The statistical prognosis is apparently not as good as it would have been had he undergone the surgery at age 4 months. I read that the prognosis depends on the extent of accumulated liver damage. Each case presumably depends on the individual and the surgeon to some degree. Baby boy looks like a champ to me! 🙏 The reason for going to India is because ostensibly that’s the world’s experts, as evidenced by the referral and the linked Mexican story. My stance is it’s better for him to get some relief even he ends up needing a follow-up liver transplant some years on, which is why I made the initial 0.024 ₿ donation. I can’t standby while he withers away presumably in pain. If the child can enjoy even one year of his childhood then it’s worth it to me.

Data regarding outcome from centers worldwide widely vary. The initial success rate of Kasai portoenterostomy (for achieving bile flow) is 60-80%. Clearly, the most critical determinant of outcome remains age at the time of operation. Although individual centers have reported favorable surgical results in some infants older than 3 months, patients are significantly less likely to require early liver transplantation if the portoenterostomy is performed when they are younger than 10 weeks.

While the Kasai procedure is not a cure for biliary atresia, it is the preferred treatment because it allows a child to grow and remain in good health for several years. A successful Kasai procedure delays the need for a liver transplant until later in childhood or even adulthood […] In general, the long-term outlook for patients with biliary atresia is excellent. Most biliary atresia patients can expect to live into adulthood with either their native liver or a transplanted liver […] Overall survival with a native liver (not transplanted) ranges from 30-55 percent at 5 years of age; and 30-40 percent at 10 years of age. It is thought that approximately 80 percent of patients with biliary atresia will require liver transplantation by the age of 20. But these statistics may change as we learn more about biliary atresia and modify our treatment approaches.

[OutOfMemory]

done. In the end, children (EDIT: and educating them) are the most precious investment into our future.

[infofront]

done. In the end, children (EDIT: and educating them) are the most precious investment into our future.

Thanks for being one of the first two donors! I've updated the total at the top. I'll also be donating some this weekend!

[Arriemoller]

I spend so much of my profits on crap, this will at least, hopefully, do some good. 0.01 sent.

[iTradeChips]

made a small donation thru a local payment processor as the baby is from my country. my prayers for the baby and their family

[infofront]

UPDATE:

Recent photos of the baby Ethan and identification of the cousin (sister of the baby’s father) who will be receiving the funds. We’ve located someone who can encash the donated ₿ to Philippines pesos (₱) depositing it by interbank transfer directly to student-teacher Cherry Ann’s BDO account on Cebu island. She will coordinate with the baby’s mother to deploy the funds. The baby’s family is on Mindanao.

Any follow-up liver surgery (in future years) could be performed in the Philippines which would presumably be affordable to them via their PhilHealth insurance. India specializes in biliary atresia surgery.

The encashment of ₿ donations will commence immediately to minimize the effect of fluctuations in the ₿ price. We will track above the amount encashed in pesos to Cherry Ann’s account

[infofront]

Thanks for you donations ArrieMoller and iTradeChips! 

[analytic.bastard]

God bless you kid

No baby deserves suffering

https://www.blockchain.com/btc/tx/46497b00a25620df92c87fd8b4cded825e828052e58de4632dfdc507d8ef16f7

[Arriemoller]

Thanks for you donations ArrieMoller and iTradeChips! 

You're welcome InfoFront.

[cAPSLOCK]

May God preserve this little life and guide the hands of the surgeons.

(confirmed before I could post. )

https://blockstream.info/tx/9d7887c4377330ef14c51f38946cea6f3fff0288dfbf4398eae44dfb2288d4d6

[infofront]

Those who donated generously may receive gifts from me if I successfully launch an ERC-20 altcoin in 2021. No promises but I do want those who helped know I appreciate their love for the downtrodden. Note we will forward receipts to @infofront for funds that have been transferred to Cherry Ann’s bank account. Maybe he will have time to post them here. Cherry Ann lives in the same household with the baby in Zamboanga City. She was originally teaching in Cebu but returned to Zamboanga to continue her education during the pandemic.

[infofront]

OP updated, reflecting new donations, and amount transferred to the boy's family so far.

[infofront]

Biliary atresia impacts ~1 in 15,000 live births. So ~100 or so in the Philippines annually. But only 10 – 20% would be in such bad condition that they absolutely must have surgery.

So we are talking about maybe 10 – 20 of infants per year from Philippines in baby Ethan’s condition. But many of those families have means via relatives to source the funds for the surgery.

So please keep in mind it’s not like we are being asked to pick one from all the suffering children the world. Suffering due to other reasons such as lack of food can be a temporary situation. Baby Ethan gets no second chance in life if he doesn’t get the surgery pronto.

[OutOfMemory]

This thread seems to hibernate a little, according to the blockexplorer stats.
*BUMP*

[infofront]

This thread seems to hibernate a little, according to the blockexplorer stats.
*BUMP*

I'm happy to provide an update that the family has now received more than half of the needed money. Exact figures are in the OP. I will also be posting proof, and some more information, later today.

[infofront]

BUMP

Added several items to the OP: transaction screenshots for proof that the pesos were sent, some recent pictures of baby Ethan, added a link to the new Go Get Funding Page, added a significant amount of information to the bottom of the OP (including the fact that a liver transplant will also be performed!), from the boys aunt, and added images of a couple medical reports

[jcojci]

Send a bit to that address.

https://www.blockchain.com/btc/tx/9cac324a9541869c061c354071e2a071ca2d705b3e46078c4699664790fbc84c

I will send it again next time. I hope it can help.

[vokain]

Bump