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Author Topic: I found out some very bad news in the family  (Read 4106 times)
pekv2
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July 11, 2012, 08:49:02 PM
 #1

Note: This is not a gratitude/donation thread.

I was just notified.

He is 7 y/o. When my nephew had his tumor, and had it removed it. The tumor has caused a disease in him, Violent tendencies. He has gone after his brother with a butcher knife, scissors, choking the dogs and killing hamsters. He has had a legal evaluation. He is having another one in 3 months, and if it is the same or worse, he his gonna be put into an mental institution.

This is fucked up at the most. I am furious and sad that I cannot do a goshdamn thing about it.
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July 11, 2012, 09:32:06 PM
 #2

No drugs available?

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July 11, 2012, 09:58:00 PM
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No drugs available?

Hmm, I don't know, I will mention this to my sister and see what she has to say about if they had mentioned anything about medicine, I have a theory though, if we lived in cali, I bet small amounts of cannabis would benefit, but by permission of a doctor and parent "my sister". I want to take him into my care, I believe I can help but I have family members living with me and they are afraid he will burn the house down or even worse, I am up a lot, I barely sleep except when I do my partially part time job. I'm waiting to talk to my sister about the entire situation, I will argue to get my nephew here. Fuk mental institutions, especially for a 7 y/o child. There is no way I will accept this nor will I go down with my tail between my legs. But what is screwed up, it's in the hands of the state now as it has already been reported, I wanted him her for three months to try to better him. By doing lots and lots of outside activity, wear him tired, keep him busy etc, do my best. That's my blood, and I will not allow it and could not stand to see it happen.

I have no trust in a mental institution, especially for a 7 y/o child.
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July 11, 2012, 10:14:05 PM
 #4

I don't have trust in any "institution"


Weed seems to offer a lot of help in some cases.. Poor kids mind is probably going a million miles a minute... 



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July 11, 2012, 10:16:46 PM
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I don't have trust in any "institution"


Weed seems to offer a lot of help in some cases.. Poor kids mind is probably going a million miles a minute...  




Note: I consider it as Cannabis in this case because he would not be smoking it but by digesting the cannabinoids, in a liquid form.

Edit:
Imo, everyone needs to step in their voting actions against the govt to legalize Cannabis. I've done my part many times already and still do.
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July 11, 2012, 10:23:44 PM
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We "my family and I" need to take it one day at a time. But I will update this thread with any new news about the situation.
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July 11, 2012, 10:25:20 PM
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I don't have trust in any "institution"


Poor kids mind is probably going a million miles a minute... 

I also, fully agree with you. In both cases but with plus more besides his mind going million miles a minute.
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July 11, 2012, 10:47:55 PM
 #8

Well you could do marijuana oil capsules with some sort of Fat to go along with it...

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July 11, 2012, 10:53:44 PM
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Well you could do marijuana oil capsules with some sort of Fat to go along with it...

Yea, thing is, neither of us live in cali/Colorado, this is one of the reasons I have so much hatred over the US govt, they have more stupidity than I do.
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July 12, 2012, 12:55:49 AM
 #10

It's not illegal unless you get caught Smiley

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July 12, 2012, 12:59:01 AM
 #11

It's not illegal unless you get caught Smiley

nah. not worth it, they will be taking blood samples then she would have both kids removed from her arms, that's why I stated approved by a doctor and her in cali/colorado and then the state/federal cannot do a damn thing about it. But yea. Won't happen cuz it's "illegal" in her state and mine.
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July 12, 2012, 01:03:14 AM
 #12

Yeah the laws on marijuana are a bit of a joke..... They have all these "people killing" drugs and their putting this much focus on a harmless plant.....

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July 12, 2012, 01:22:51 AM
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Yeah the laws on marijuana are a bit of a joke..... They have all these "people killing" drugs and their putting this much focus on a harmless plant.....

Agreed. Ridiculous. Cannabis does help too many ways to list actually. It's the greed of the govt's income, coming from pharmaceutical company's, that's the stupidity behind the govt. But they ignore to see the how much income they may have come in by legalizing. In the end, ppl/kids suffer like my nephew.

First time I seen my nephew in a few months was little bit after his brain surgery, man, I could not let him go out of my arms. lol
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July 12, 2012, 01:38:29 AM
 #14

That's tough.... I could imagine... My son has been in and out of the hospital a few times in his life..... about a year ago he was diagnosed type 1 diabetic..... he'll be two in August....

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July 12, 2012, 01:42:57 AM
 #15

Maybe silk road coud help you ?

This situation really sucks and I know as a parent what your nephew's parents would be going through. Is there any chance they would move to california ?

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July 12, 2012, 01:59:21 AM
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^ I don't think it's the getting the "meds" part.. It's the whole stigma with it being "illegal" Smiley

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July 12, 2012, 02:07:59 AM
 #17

Maybe silk road coud help you ?

This situation really sucks and I know as a parent what your nephew's parents would be going through. Is there any chance they would move to california ?

I was hoping that name would not pop up in here. Sorry, I will ignore any suggestions about sr in this thread.

Yes, as much as it is, with her back deteriorating, the tumor when she found out, then the brain surgery, and now the violent tendencies, it is putting a beating on her mind. I've got a few friends calling her and chatting with her as she moved away from her home state, for support.

I doubt it, her fiancee is locked into a contract for truck driving atm for I believe two years. And where they live, he, her fiancee, has family where they are. I don't know if he'd approve but i would not be happy if he disproved if she wanted to move, but more than likely, I've known the guy since 1997 or 96, he's cool as hell, he would approve because it's care for the child.

It is, it's a very horrible situation. I don't know how she does it 24/7 around the clock ever since her back started to deteriorate upto now.
 But they say, women are far more stronger than men, in the mind. I think above proves it.
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July 12, 2012, 02:10:55 AM
 #18

That's tough.... I could imagine... My son has been in and out of the hospital a few times in his life..... about a year ago he was diagnosed type 1 diabetic..... he'll be two in August....

Oh omy. That's just terrible, man. How is he doing now? Kicking it out? < meaning doing ok.
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July 12, 2012, 02:35:42 AM
 #19

Just to pitch in here with a suggestion.

There is mental instituations and treatment facilities.

Mental instituations -> STAY AWAY, FAR AWAY. (usually government run)

Treatment Facilities -> Can actually be his best possible option, very expensive in most cases. (usually privately run)

If her son's case is terminal then I would suggest simply moving him to wherever he can get the best care since no facility would at all help him however if his case isnt terminal and can improve or even get cured then at all cost you should consult whatever top rated Treatment facility you can get him to.

I know it allways seem better and in most case is better, to keep a "sick" person under your wing but in some cases its actually way worse specially at a young age do take that route. Not all medical practices dealing with the mentally ill is out to turn them into "Frankensteins love child" and there is many privately run treatment facilities who do care about the patient and try their best to improve their conditions so they can live a full adult life eventually.

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July 12, 2012, 02:43:47 AM
 #20

Just to pitch in here with a suggestion.

There is mental instituations and treatment facilities.

Mental instituations -> STAY AWAY, FAR AWAY. (usually government run)

Treatment Facilities -> Can actually be his best possible option, very expensive in most cases. (usually privately run)

If her son's case is terminal then I would suggest simply moving him to wherever he can get the best care since no facility would at all help him however if his case isnt terminal and can improve or even get cured then at all cost you should consult whatever top rated Treatment facility you can get him to.

I know it allways seem better and in most case is better, to keep a "sick" person under your wing but in some cases its actually way worse specially at a young age do take that route. Not all medical practices dealing with the mentally ill is out to turn them into "Frankensteins love child" and there is many privately run treatment facilities who do care about the patient and try their best to improve their conditions so they can live a full adult life eventually.

I have absorbed this info, I will definitely email her this, if she has one, if not I will print this out and mail it to her.

I thank you you so much for this astonishing info.
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July 12, 2012, 03:25:07 AM
 #21

Madness, my spelling in that response went to crap, 4am mornings starting to hit me bad. Wink

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July 12, 2012, 05:17:27 AM
 #22

Madness, my spelling in that response went to crap, 4am mornings starting to hit me bad. Wink

Over [allways]? meh, don't even bother LoL, I spell checked it with my eyes, from what I seen, all I caught was [allways]
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July 12, 2012, 10:48:21 AM
 #23

That's tough.... I could imagine... My son has been in and out of the hospital a few times in his life..... about a year ago he was diagnosed type 1 diabetic..... he'll be two in August....

Oh omy. That's just terrible, man. How is he doing now? Kicking it out? < meaning doing ok.



our little guy is a trooper.... at under 2 years old he's close to testing his own blood sugar and never cries when he's getting his insulin shot... He's tougher then i'll ever be....




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July 12, 2012, 11:03:18 AM
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Marijuana for a child with a possible mental illness? Are you serious?

Firstly, giving any child a mind altering substance is something that should only be done with a psychiatrists' input, and as a last resort. Secondly, don't give a drug that can cause anxiety to a person displaying symptoms of an emotional disorder. Thirdly, don't give marijuana to a person who is at risk of a psychosis.

I'm not sure what institutions are like in your country. In mine they vary a bit, and tend to graduate inmates to half way houses as soon as they're ready for the public. It wouldn't be my first choice as a place to live.

But - and this is the terrible choice here - do you wait for a tragedy to occur first? If not an institution, then there'd need to be full time carers and minimal exposure to the public.

I don't envy you, and I hope there's another option. Pot is not that other option though.

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July 12, 2012, 11:10:53 AM
 #25

you think Marijuana is mind altering? are you serious?



Booze is mind altering... I could not drink 20 beers and act normal BUT I could smoke 20 joints and act normal with a little bit of munchies attached Smiley


are cigarettes mind altering.... ^ this is why marijuana has such a bad name...... people believe all the shit talk about it.....



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July 12, 2012, 11:30:42 AM
 #26

you think Marijuana is mind altering? are you serious?



Booze is mind altering... I could not drink 20 beers and act normal BUT I could smoke 20 joints and act normal with a little bit of munchies attached Smiley


are cigarettes mind altering.... ^ this is why marijuana has such a bad name...... people believe all the shit talk about it.....




So why use it if it doesn't change your mood? Of course it is mind altering. Anything that changes the way your mind works is. Like alcohol, cigarettes, high sugar foods, caffeine.

As a hypothetical I think I'd be more likely to agree to have surgery from a cigarette smoker or coffee drinker than an alcoholic or a pot smoker though.



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July 12, 2012, 12:30:24 PM
 #27

I have to agree with organofcorti.

Mind altering drugs even as silly as coffee is bad for anyone who havnt hit puberty yet, their minds are still very fragile and brains are adapting/learning at speed of light every day but adding stimulants to the mix could be degenerate very quickly for them.

This is why young kids have ADD quite often, it doesnt help boosting that natural disorder. Smiley

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July 12, 2012, 12:40:15 PM
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Marijuana for a child with a possible mental illness? Are you serious?

Firstly, giving any child a mind altering substance is something that should only be done with a psychiatrists' input, and as a last resort. Secondly, don't give a drug that can cause anxiety to a person displaying symptoms of an emotional disorder. Thirdly, don't give marijuana to a person who is at risk of a psychosis.

I'm not sure what institutions are like in your country. In mine they vary a bit, and tend to graduate inmates to half way houses as soon as they're ready for the public. It wouldn't be my first choice as a place to live.

But - and this is the terrible choice here - do you wait for a tragedy to occur first? If not an institution, then there'd need to be full time carers and minimal exposure to the public.

I don't envy you, and I hope there's another option. Pot is not that other option though.

This

THC is a bad bad idea for anyone with a risk of psychosis and even worse in such a young child.

My advice would be an anti-psychotic - these drugs are specifically DESIGNED for things like this.
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July 12, 2012, 12:44:12 PM
 #29

I'm sorry about the situation. That is just too bad for that to happen to anyone.  Undecided

As a side note, I acted like him when I was 7 too. I threw dishes at my sisters in rage. I grew out of it.

I also had a friend though who was a devout Catholic, studying at Notre Dame to be a priest, had brain surgery when he got in a car crash, and came out wondering who is family was and why he did what he did before, didn't know why he believed in god in the first place and now considers it silly, etc.

The human brain is a scary thing.



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July 12, 2012, 02:22:25 PM
 #30

you think Marijuana is mind altering? are you serious?



Booze is mind altering... I could not drink 20 beers and act normal BUT I could smoke 20 joints and act normal with a little bit of munchies attached Smiley


are cigarettes mind altering.... ^ this is why marijuana has such a bad name...... people believe all the shit talk about it.....




So why use it if it doesn't change your mood? Of course it is mind altering. Anything that changes the way your mind works is. Like alcohol, cigarettes, high sugar foods, caffeine.

As a hypothetical I think I'd be more likely to agree to have surgery from a cigarette smoker or coffee drinker than an alcoholic or a pot smoker though.




I will have to say that those are all minor things.. I am talking mind altering... as in you can't act like yourself... MOST prescribed drugs have worse side affects then any amount of marijuana.  If I take 1 10mg valium I have a hang over for 2 days from one pill.. Think of the side affects from someone taking that stuff numerous times daily.

I was a pretty bad kid to... I enjoyed settings fires and fighting, I grew out of it..... Have been self medicating with marijuana for 10+ years...

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July 12, 2012, 03:29:08 PM
 #31

you think Marijuana is mind altering? are you serious?



Booze is mind altering... I could not drink 20 beers and act normal BUT I could smoke 20 joints and act normal with a little bit of munchies attached Smiley


are cigarettes mind altering.... ^ this is why marijuana has such a bad name...... people believe all the shit talk about it.....




So why use it if it doesn't change your mood? Of course it is mind altering. Anything that changes the way your mind works is. Like alcohol, cigarettes, high sugar foods, caffeine.

As a hypothetical I think I'd be more likely to agree to have surgery from a cigarette smoker or coffee drinker than an alcoholic or a pot smoker though.




I will have to say that those are all minor things.. I am talking mind altering... as in you can't act like yourself... MOST prescribed drugs have worse side affects then any amount of marijuana.  If I take 1 10mg valium I have a hang over for 2 days from one pill.. Think of the side affects from someone taking that stuff numerous times daily.

You're wrong in almost every important respect.

"Mind altering" is not defined as "When AndrewBUD can't act like himself". It means to alter the way your mind works. It's not a sliding scale from barely noticeable to totally fucked up. Compare hallucinogens and narcotics, which alter the way your mind works in quite different ways. Your idea of "mind altering" is not just wrong, it ignores what altering your mind actually is.

Side effects between drugs cannot be compared as "worse", except as personal reaction and personal preference. What you mean is "side effects of most prescribed drugs AndrewBUD has taken are worse than the side effects of marijuana on AndrewBUD".

The side effects you experience are not the same as the side effects others experience. You're making a judgement call on a sample size of 1 - you. Or maybe a few of your friends who agree. This does not constitute a double blind study of efficacy or a comparison of side effects in a particular area.

Finally, as well as possibly not suiting your neurochemical make up, prescription drugs are prescribed for a purpose. From what you've written, your use of valium would be considered "off label" at best.

I'm criticising what you wrote, but don't take it the wrong way. I'm not criticising your choices. I understand that for you, marijuana has been a godsend and has enabled you to live a normal life which otherwise may not have been possible. However your own experiences do not mean a random 7 year old will enjoy the same benefits. You should not be giving other forum members medical advice about children based on personal experience and preferences.


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July 13, 2012, 01:36:04 AM
 #32

End the fucking shit, right here, organofcorti.

I have a theory though, if we lived in cali, I bet small amounts of cannabis would benefit, but by permission of a doctor and parent "my sister".

If the doctor think it would not help, then so be it. If it would, then so be it.

/end of your fucking rant in this thread.
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July 13, 2012, 01:41:35 AM
 #33

I'm sorry about the situation. That is just too bad for that to happen to anyone.  Undecided

As a side note, I acted like him when I was 7 too. I threw dishes at my sisters in rage. I grew out of it.

I also had a friend though who was a devout Catholic, studying at Notre Dame to be a priest, had brain surgery when he got in a car crash, and came out wondering who is family was and why he did what he did before, didn't know why he believed in god in the first place and now considers it silly, etc.

The human brain is a scary thing.




It is. Yea, I think my sister had time to let it soak in, she and the rest of use just found this out yesterday. So, were all easing, making plans on what to do next.
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July 13, 2012, 01:42:40 AM
 #34

End the fucking shit, right here, organofcorti.

I have a theory though, if we lived in cali, I bet small amounts of cannabis would benefit, but by permission of a doctor and parent "my sister".

If the doctor think it would not help, then so be it. If it would, then so be it.

/end of your fucking rant in this thread.
If you bothered to carefully read what he said, all he said was that AndrewBUD is not a doctor and should not be prescribing things, and that you just need to ask a real doctor.

What works for one person DOES NOT always work for another.

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July 13, 2012, 01:45:18 AM
 #35

End the fucking shit, right here, organofcorti.

I have a theory though, if we lived in cali, I bet small amounts of cannabis would benefit, but by permission of a doctor and parent "my sister".

If the doctor think it would not help, then so be it. If it would, then so be it.

/end of your fucking rant in this thread.
If you bothered to carefully read what he said, all he said was that AndrewBUD is not a doctor and should not be prescribing things, and that you just need to ask a real doctor.

What works for one person DOES NOT always work for another.

This is where I caught it.

Marijuana for a child with a possible mental illness? Are you serious?

Firstly, giving any child a mind altering substance is something that should only be done with a psychiatrists' input, and as a last resort. Secondly, don't give a drug that can cause anxiety to a person displaying symptoms of an emotional disorder. Thirdly, don't give marijuana to a person who is at risk of a psychosis.

I'm not sure what institutions are like in your country. In mine they vary a bit, and tend to graduate inmates to half way houses as soon as they're ready for the public. It wouldn't be my first choice as a place to live.

But - and this is the terrible choice here - do you wait for a tragedy to occur first? If not an institution, then there'd need to be full time carers and minimal exposure to the public.

I don't envy you, and I hope there's another option. Pot is not that other option though.

& this is where he didn't read.

I have a theory though, if we lived in cali, I bet small amounts of cannabis would benefit, but by permission of a doctor and parent "my sister".
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July 13, 2012, 01:47:43 AM
 #36

MJ is known to cause or exacerbate the effects of http://en.wikipedia.org/wiki/Psychosis and therefore should be approached extremely carefully. That is all.

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July 13, 2012, 01:55:29 AM
 #37

MJ is known to cause or exacerbate the effects of http://en.wikipedia.org/wiki/Psychosis and therefore should be approached extremely carefully. That is all.

Yes, i understand. I personally would not just shove cannaboids down his throat. By going to a doctor, where it is legal, this enables for an evaluation by a doctor/doctors in his case, I probably think there will be a few doctors in his case anyways, and see what the doctors come up with and to see what they have to say, if they said it would cause more harm, we would go to the next option/opions of medicines for him.

It was theory and the thread got out of control.
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July 13, 2012, 02:01:28 AM
 #38

a lot of close minded people around here.

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July 13, 2012, 02:15:42 AM
 #39

I apologise, pekv2. I wasn't trying to tell you what to do, and I should know better than to become involved with something as upsetting as a family member's ill health. I just wanted you to be aware that recreational drugs can be damaging for a brain still developing its own model of how reality works - and this is exactly what any brain under the age of 18 years is doing.

Most of what I wrote was aimed at AndrewBUD's comments but I can see I didn't make any clear delineation between my responses aimed at him and at you.

I'm not at all against adult use of whatever substance the adult chooses - it was just worrying to see you even think that marijuana could possibly be helpful for a person whose brain has not yet finished maturing and who may be at risk of mental illness. I have no agenda, and I have posted my thoughts on the matter in other threads. This is the first time I've posted an anti-recreational drug post, and this is because children and recreational drugs shouldn't mix.

I hope everything goes well for your family.


@AndrewBUD: I'm not closed minded. I just base my opinions on all available evidence, not just personal experience.



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July 13, 2012, 02:36:18 AM
 #40

I apologise, pekv2. I wasn't trying to tell you what to do, and I should know better than to become involved with something as upsetting as a family member's ill health. I just wanted you to be aware that recreational drugs can be damaging for a brain still developing its own model of how reality works - and this is exactly what any brain under the age of 18 years is doing.

Most of what I wrote was aimed at AndrewBUD's comments but I can see I didn't make any clear delineation between my responses aimed at him and at you.

I'm not at all against adult use of whatever substance the adult chooses - it was just worrying to see you even think that marijuana could possibly be helpful for a person whose brain has not yet finished maturing and who may be at risk of mental illness. I have no agenda, and I have posted my thoughts on the matter in other threads. This is the first time I've posted an anti-recreational drug post, and this is because children and recreational drugs shouldn't mix.

I hope everything goes well for your family.


@AndrewBUD: I'm not closed minded. I just base my opinions on all available evidence, not just personal experience.




Well, I apologize for freakin out, but the thread got out control. If you like, create a new thread about the cannabis and children. Then I'll pop my head in there and show you some facts. But not in here, plz.
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July 13, 2012, 02:54:18 AM
 #41

sounds to me like he could be struggling with this his whole life
He needs help, not locked away.

are you sure theirs nothing else making the situation worst?
abusive husband?
traumatic experience?







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July 13, 2012, 03:03:32 AM
 #42

sounds to me like he could be struggling with this his whole life
He needs help, not locked away.

are you sure theirs nothing else making the situation worst?
abusive husband?
traumatic experience?

He is autistic with A.D.D. And from not to long ago the tumor that was removed, he ktp throwing up , my sister took him to the hospital and the hospital found the tumor, how ever they do that. Cat scan?

It's very bad. all of it. Poor thing, it's a sin what he's going through.
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July 13, 2012, 03:09:42 AM
 #43

A lot of children are going through a lot of bad stuff, its a sin for any child to go through any of it. Cancer, tumors, diabetes, lip problem etc, list just goes on and on.

The stuff gets worse every 10 years.
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July 13, 2012, 03:13:38 AM
 #44

sounds to me like he could be struggling with this his whole life
He needs help, not locked away.

are you sure theirs nothing else making the situation worst?
abusive husband?
traumatic experience?

He is autistic with A.D.D.

yes their appears to be an epidemic of this ATM.

is he vaccinated?
I am against vaccinating, because i believe it can cause these kinds of problems ( and many other unknown issues )
I wish i could of not vaccinated my kid, but my wife is unreasonable when it comes to listing to doctors.

 Undecided

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July 13, 2012, 03:24:17 AM
 #45

sounds to me like he could be struggling with this his whole life
He needs help, not locked away.

are you sure theirs nothing else making the situation worst?
abusive husband?
traumatic experience?

He is autistic with A.D.D.

yes their appears to be an epidemic of this ATM.

is he vaccinated?
I am against vaccinating, because i believe it can cause these kinds of problems ( and many other unknown issues )
I wish i could of not vaccinated my kid, but my wife is unreasonable when it comes to listing to doctors.

 Undecided


You're right about that, I just posted right above your post saying the stuff gets worse every ten years.

I don't know if he had been or not.
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July 13, 2012, 08:45:17 AM
 #46

Now my pops went into the hospital few hours ago in an ambulance for heart congestive failure, he has water built up in the longs and bottom of his body they gave him a shot to make him urinate, a couple potassium pills, the shot gets the water out of the lungs and body where it is bloated, but the shot, also steals all the potassium out, tis the reason for the potassium pills. Scared the the out of me, but everything is all good, docs are taking well care of him now. I hate this week actually.

Very bad week. meh.

I'm going to see him tomorrow.
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July 13, 2012, 08:58:20 AM
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Now my pops went into the hospital few hours ago in an ambulance for heart congestive failure, he has water built up in the longs and bottom of his body they gave him a shot to make him urinate, a couple potassium pills, the shot gets the water out of the lungs and body where it is bloated, but the shot, also steals all the potassium out, tis the reason for the potassium pills. Scared the the out of me, but everything is all good, docs are taking well care of him now. I hate this week actually.

Very bad week. meh.

I'm going to see him tomorrow.

I'm really sorry to hear that and I really hope everything is going to be OK, you have to find inner strength to go through this hard times. Remember, it's always sunny after the rain... You have my best wishes for you and your family...
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July 13, 2012, 09:29:18 AM
 #48

sounds to me like he could be struggling with this his whole life
He needs help, not locked away.

are you sure theirs nothing else making the situation worst?
abusive husband?
traumatic experience?

He is autistic with A.D.D. And from not to long ago the tumor that was removed, he ktp throwing up , my sister took him to the hospital and the hospital found the tumor, how ever they do that. Cat scan?

It's very bad. all of it. Poor thing, it's a sin what he's going through.

If he had a brain tumour they would have performed an MRI or CAT to find it and then surgically removed it - but any brain tumour being removed will have the side effect of removing some healthy tissue, there may even be neural circuits inside the tumour that were still being used. In a young brain, especially a nontypical brain (autism+ADD), the potential problems are multiplied.

There is some good news though - young brains are more neuroplastic, meaning they can more easily rewire themselves and self-repair with the right support under the expert care of a neurologist and psychiatrist - this is what is needed, not cannabis.

Best approach is this:
  • Professional support from both a neurologist and psychiatrist
    I can't stress this enough - and they need to work closely together to best help, the good news here is that there should already be a consultant on his case due to the recent surgery, I would ask them for referral to a good psychiatrist for outpatient treatment
  • Avoid unprescribed psychoactive substances
    This would include cannabis but also includes things such as caffeine or even certain antihistamines (allergy pills) - it's best to mess with his neurochemistry as little as possible, especially with any substance that carries a risk of addiction or psychosis - this ties in heavily with the above
  • Maximise sensory input of a tolerable nature
    Emphasis on tolerable - i'm autistic myself (aspergers) and know just how nightmarish sensory overload can be, for a child it must be even worse so I urge you to avoid risking sensory overload, at the same time you need to provide a stimulating environment to help encourage growth and repair
  • Diet
    Make sure the diet is high in protein and omega 3 in order to give the raw fuel needed to encourage neurogenesis (growth of new neurons) - there's tons of evidence on omega3 in particular being incredibly safe and effective for behavioural issues in children too, find one of those children's orange flavour chewy supplements and give it daily
  • Exercise - but not forced
    Running especially helps production of endorphins and can make anyone better able to cope with stress - but only if it isn't forced, any kind of cardio which isn't forced could be beneficial here so long as it's fun

As you've mentioned autism, here's a few "treatments" and organisations to avoid like the plague:
Autism speaks
Defeat autism now
Generation rescue
Chelation
MB12 shots
ABA

I would also caution against ritalin or any of the other older ADD meds - ask the psychiatrist about atomoxetine and other atypical ADD medications - the older stimulant based medications while effective are known to cause memory problems later in life while the newer ones do not. Don't cut off any meds suddenly that are already prescribed though, ask the psychiatrist first.
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July 13, 2012, 09:31:13 AM
 #49

sounds to me like he could be struggling with this his whole life
He needs help, not locked away.

are you sure theirs nothing else making the situation worst?
abusive husband?
traumatic experience?

He is autistic with A.D.D.

yes their appears to be an epidemic of this ATM.

is he vaccinated?
I am against vaccinating, because i believe it can cause these kinds of problems ( and many other unknown issues )
I wish i could of not vaccinated my kid, but my wife is unreasonable when it comes to listing to doctors.

 Undecided


If your wife chose to vaccinate your child and you did not, your wife took the decision to listen to the actual science and protect your child from a preventable disease.
The vaccination theory started by andrew wakefield has been completely and utterly debunked by now, so there's really no excuse for not vaccinating.
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July 13, 2012, 10:26:49 AM
 #50

I'm really sorry to hear that and I really hope everything is going to be OK, you have to find inner strength to go through this hard times. Remember, it's always sunny after the rain... You have my best wishes for you and your family...

Why, thank you, AS, I appreciate the support. I sure will. It's a lot, just wow, I ask myself today when I found out he went to the hospital, I was like , "*** is going on" nodding my head looking for answers, none came about.

If he had a brain tumour they would have performed an MRI or CAT to find it and then surgically removed it - but any brain tumour being removed will have the side effect of removing some healthy tissue, there may even be neural circuits inside the tumour that were still being used. In a young brain, especially a nontypical brain (autism+ADD), the potential problems are multiplied.

There is some good news though - young brains are more neuroplastic, meaning they can more easily rewire themselves and self-repair with the right support under the expert care of a neurologist and psychiatrist - this is what is needed, not cannabis.

Best approach is this:
  • Professional support from both a neurologist and psychiatrist
    I can't stress this enough - and they need to work closely together to best help, the good news here is that there should already be a consultant on his case due to the recent surgery, I would ask them for referral to a good psychiatrist for outpatient treatment
  • Avoid unprescribed psychoactive substances
    This would include cannabis but also includes things such as caffeine or even certain antihistamines (allergy pills) - it's best to mess with his neurochemistry as little as possible, especially with any substance that carries a risk of addiction or psychosis - this ties in heavily with the above
  • Maximise sensory input of a tolerable nature
    Emphasis on tolerable - i'm autistic myself (aspergers) and know just how nightmarish sensory overload can be, for a child it must be even worse so I urge you to avoid risking sensory overload, at the same time you need to provide a stimulating environment to help encourage growth and repair
  • Diet
    Make sure the diet is high in protein and omega 3 in order to give the raw fuel needed to encourage neurogenesis (growth of new neurons) - there's tons of evidence on omega3 in particular being incredibly safe and effective for behavioural issues in children too, find one of those children's orange flavour chewy supplements and give it daily
  • Exercise - but not forced
    Running especially helps production of endorphins and can make anyone better able to cope with stress - but only if it isn't forced, any kind of cardio which isn't forced could be beneficial here so long as it's fun

As you've mentioned autism, here's a few "treatments" and organisations to avoid like the plague:
Autism speaks
Defeat autism now
Generation rescue
Chelation
MB12 shots
ABA

I would also caution against ritalin or any of the other older ADD meds - ask the psychiatrist about atomoxetine and other atypical ADD medications - the older stimulant based medications while effective are known to cause memory problems later in life while the newer ones do not. Don't cut off any meds suddenly that are already prescribed though, ask the psychiatrist first.

Gareth (BitInstant), Wow, very pleasant and harsh to know info at the same time. Sound like a doctor.

Yes, the 16 doctors or so that were at the surgery [I think 16 or so, but could have been between 13 and 20] had, had drilled into his skull and did what they needed to do. And that is bad news, I had not known this that when performing this surgery it removed important tissue, but as you explained, lots of protein, etc, at a  young age will help build it back up by itself, that there is great news to hear that there is very much hope for him, as though I still have very much hope for him as he is my kin as anyone else would.

It's a lot of info to absorb that you wonderfully successfully wrote, I am astonished by it. It is another print out that I will print out many and pass it along to my family members. Everything you have wrote is fantastic. I really appreciate it Gareth. Oh god, the ridilin, by all means never give to anyone as you said, it was given to me in the late 80's, early 90's, and that shows a lot for myself as an example to never give you child ridilin, coffee, pop etc. With all this info, it's quite amazing and sad at the same time. Thank you, for your time for typing this up.
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July 13, 2012, 10:29:54 AM
 #51

No problem, looking out for fellow autistics is something i've been doing actively for years
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July 13, 2012, 10:32:00 AM
 #52

I was a pretty bad kid,,,, My parents had me on ritalin for a very short while... They did not like what it turned me in to..... Seemed to make my behavior worse.... The doctors my parents brought me to wanted to feed me all sorts of different drugs....


My parents were not up for me being their guinea pig.....15 years down the line, now im the good kid and my brother is the bum souping off my parents @ 30 years old Tongue

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July 13, 2012, 10:40:22 AM
 #53

I was a pretty bad kid,,,, My parents had me on ritalin for a very short while... They did not like what it turned me in to..... Seemed to make my behavior worse.... The doctors my parents brought me to wanted to feed me all sorts of different drugs....


My parents were not up for me being their guinea pig.....15 years down the line, now im the good kid and my brother is the bum souping off my parents @ 30 years old Tongue

To be clear, there are appropriate uses for psychiatric meds, but greater care needs to be taken with developing brains and some are known for causing later problems - as with all medicine it's a tradeoff between therapeutic effects and side effects.
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July 13, 2012, 10:45:39 AM
 #54

^ just like any drug..... Pain pills to meds for diabetis...... Is it worth taking to have these side affects? It also depends on the individual.....




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July 13, 2012, 09:51:07 PM
 #55


yes their appears to be an epidemic of this ATM.

is he vaccinated?
I am against vaccinating, because i believe it can cause these kinds of problems ( and many other unknown issues )
I wish i could of not vaccinated my kid, but my wife is unreasonable when it comes to listing to doctors.

 Undecided


If your wife chose to vaccinate your child and you did not, your wife took the decision to listen to the actual science and protect your child from a preventable disease.
The vaccination theory started by andrew wakefield has been completely and utterly debunked by now, so there's really no excuse for not vaccinating.
+1 to what Gareth said. Your wife is a clever and smart woman, she cares about her kid. Not vaccinating him is ridicolous, i can't believe in 2012 there are people who are against vaccinating. We are no more in middle age!

and about the "ADD epidemy"...

Quote
I was a pretty bad kid,,,, My parents had me on ritalin for a very short while... They did not like what it turned me in to..... Seemed to make my behavior worse.... The doctors my parents brought me to wanted to feed me all sorts of different drugs....


My parents were not up for me being their guinea pig.....15 years down the line, now im the good kid and my brother is the bum souping off my parents @ 30 years old Tongue

Nah you were a normal kid. Giving you drugs was a crazy thing.

It seems that in USA parents no more want to take care of their kids and to stop them from interrupting them, ta-dah, things like ADD and Ritalin get epidemic
Tons of children wich are perfectly normal suddenly are "diagnosticated" with ADD and guess what? Must take ritalin!


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July 13, 2012, 11:17:53 PM
 #56

sounds to me like he could be struggling with this his whole life
He needs help, not locked away.

are you sure theirs nothing else making the situation worst?
abusive husband?
traumatic experience?

He is autistic with A.D.D.

yes their appears to be an epidemic of this ATM.

is he vaccinated?
I am against vaccinating, because i believe it can cause these kinds of problems ( and many other unknown issues )
I wish i could of not vaccinated my kid, but my wife is unreasonable when it comes to listing to doctors.

 Undecided


If your wife chose to vaccinate your child and you did not, your wife took the decision to listen to the actual science and protect your child from a preventable disease.
The vaccination theory started by andrew wakefield has been completely and utterly debunked by now, so there's really no excuse for not vaccinating.

wtv man its all BS

http://www.youtube.com/watch?v=K1Hw-Q23S_s

in any case whats the point, the flue isn't deadly....


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July 13, 2012, 11:20:55 PM
 #57

http://www.ncbi.nlm.nih.gov/pubmed/21917556
http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(10)60175-4/fulltext
http://www.quackwatch.com/03HealthPromotion/immu/autism.html
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July 13, 2012, 11:21:37 PM
 #58


i can hit you with a ton of link that would support my side as well...

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July 13, 2012, 11:24:31 PM
 #59

fine two can play at this game

http://articles.mercola.com/sites/articles/archive/2011/05/19/us-government-concedes-hep-b-vaccine-causes-systemic-lupus-erythematosus.aspx

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July 13, 2012, 11:24:38 PM
 #60

You could give a bunch of links - would they be good science or just more conspiracy theories about vaccines?
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July 13, 2012, 11:25:15 PM
 #61

http://www.naturalnews.com/031616_vaccines_Japan.html

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July 13, 2012, 11:26:34 PM
 #62


Vaccines have side effects in a minority of patients - that's true. (Autism isn't one of them by the way)

The diseases they prevent have some rather nastier effects which are far more deadly in a majority of patients.


Do the maths.
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July 13, 2012, 11:26:49 PM
 #63

You could give a bunch of links - would they be good science or just more conspiracy theories about vaccines?

theirs doctors that actually think about it and come to the conclusion that its not good

and their are some doctors that read books and pass a test

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July 13, 2012, 11:28:10 PM
 #64

Cut that shit out, adamstgBit.


Pekv2 already made it clear he doesn't want off-topic replies and people arguing about science (or in your case, lack thereof) in this thread. Just leave it alone, OK?



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July 13, 2012, 11:38:56 PM
 #65

Cut that shit out, adamstgBit.


Pekv2 already made it clear he doesn't want off-topic replies and people arguing about science (or in your case, lack thereof) in this thread. Just leave it alone, OK?




mhmm. +1

--

@adamstgBit
If you like to talk about vaccines, create a new thread about vaccines, we'll all chip in over there. Ty.

--

On another note, I just got back from the hospital, my pops is doing much better, legs are still swollen and so is his belly, but his breathing is much better than it was.

As for my nephew, no new news on him, his brother just left yesterday for a 25 day ride on the rig. Which is cool, it gets him out for a while, my pops just upgraded his celly n all a few days ago, he was ecstatic to go, as it is a trip around the U.S.A. That gives my sister time alone with my other nephew, we'll see how it all goes.
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July 14, 2012, 11:59:00 AM
 #66

Well, today, in two hours, they are gonna perform an angiogram up through his leg artery upto his heart, and check out his stents to make sure they aren't going bad, and or any clots. Afterwards, it could come out either good or bad news. With my nephew and him, gosh. But I will be there, while they perform it. Last time it was him dead on the table I think back in 04, and I seen it all, but they revived him. Becomes nerve racking. But it's gonna be a few family members and I.
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July 14, 2012, 09:58:15 PM
 #67

I got back from the hospital, very bad news.


This is very difficult. The cardiologists doctor sat my mother and I down, then he sat down. Which is not a good sign in the first place.

My dads heart keeps growing because the muscle cannot any longer keep tight but to expand, so it keep stretching, resulting in lots of bad things, one is congestive heart failure = fluid build up everywhere, the other is bad regulated blood through out the body.

My mom and I were there for the heart angiogram. It's very bad. Room next to the the room that he was in.

Either.

A) A device that will keep him alive for so long.
B) A heart transplant.

My mom is calling all of my family. The above is pretty much as close as I could get it, from what the doc stated.

My mother and I are still in severe shock atm as for my sister too, even though she is far, far away, but it was worse in person.

Just like to let you all to know. My mind is spinning.

This and about my nephew is just devastating. I'm in limbo when idle.

The tears haven't began yet for me.
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July 15, 2012, 02:35:23 AM
 #68

Very hard my man..... I wish you and your family the best of luck..... Keep a positive attitude as much as possible...

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July 15, 2012, 03:08:37 AM
 #69

Yea, ian85 and SecurityCult from btc-e chat is gonna help me with a fundraiser when ever I can provide proof of health documents of my father after he gets on a donators list.

Think that sounds safe to send out documents like that?

I don't know these guys, if anyone here that is trusted member and can vouch for them, this would help.

Edit:

Note:
I am not doing it in this thread either as stated in OP, and this thread originally is about my nephew and now it's bout both.
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July 15, 2012, 03:00:41 PM
 #70

That is still a very nice offer....


I am in the process of getting a second job to help pay for my sons diabetic supplies.. I really need a drug plan..... Even with a drug plan only insulin is covered... all the Testing strips, lancets and Pen Needle tips are not covered and are the most expensive

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July 15, 2012, 04:17:27 PM
 #71

Yea, ian85 and SecurityCult from btc-e chat is gonna help me with a fundraiser when ever I can provide proof of health documents of my father after he gets on a donators list.

Think that sounds safe to send out documents like that?

I don't know these guys, if anyone here that is trusted member and can vouch for them, this would help.

Edit:

Note:
I am not doing it in this thread either as stated in OP, and this thread originally is about my nephew and now it's bout both.

In re. your pop, but may apply to nephew.

If, during their end days and are at home under hospice, be mindful of the morphine issue. My dad was sent home two years ago to the day, given about six months (tumor between lungs and heart), therefore he was planning the last fishing trip to Wisconsin. Once home, hospice was put in place and instructed us (siblings) on how to administer the morphine for pain. A Thursday morning, he was up and about, but the nurse had my next older brother give our dad the first dose due to him claiming to be in a little discomfort. Less than an hour later, he could no longer talk. Later that evening, assuming he was in pain and wanted to comfort him some more, the second and last does was administered. He was gone on Friday.

Please do due diligence on this morphine issue, pekv2, and goes the same for anybody else.

~Bruno~
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July 15, 2012, 10:38:19 PM
 #72

I suppose, if you can or know someone, you could get a fundraiser started for him. I'll let you know how this works.

Wow, will do, definitely. If never administered, nothing would have happened. That is a new dirty to me. Prob though not to others.

--

I get to the hospital, now a defibrillator guy that will be inplanting a defibrillator, says the cardiologist is wrong.

Now we all are confused in to what is going on. meh at its finest.

Something is facted up over at that hospital.

Messing with my pops life here.
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July 17, 2012, 12:43:13 AM
 #73

Well, some good news so far, I woke with my nephew here, not to to stay for 3 months but for a few days while my sister is here as well.

Surprised, my pops at the hospital with my sisters and nephews visit, look on his face, is great.

The doctor had implanted the defibrillator today, it's a three wire, higher than usual power for an individual defibrillator with a 5 year battery that can be changed out at any dockers office that has the supplies to do so. The surgery went well. He has him arm slinged tightly against his body for 24hrs, and possibly be out by tomorrow.

My nephew seen me, gave me a huge ass hug, it was very welcoming.

All in all, today is a good day.
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July 24, 2012, 07:24:00 PM
 #74

For the Autism, check out EEG neurofeedback therapy. There are some videos about it on youtube. It is showing the best results out of anything I have seen so far. It is clearly turning barely functional nonverbal autistic children into regular happy talkative and playful kids.

BITCOINTALK STAFF SELECTIVELY ENFORCE THE RULES IN AN ATTEMPT TO CREATE A CHILL EFFECT AND PERMANENTLY REMOVE ME AND OTHERS FROM THIS FORUM AS RETALIATION FOR SPEAKING OUT ABOUT THEIR ABUSIVE BEHAVIOR, AND THAT OF THEIR PERSONAL CLIQUES.
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July 24, 2012, 07:46:30 PM
 #75

Will do. Thanks.

Yeah, he's been here all week, so far, he's been great, they left last night. I have faith he will be alright if he keeps acting like how he did when he was here. No problems at all, he loves call of duty 2 pc game Lol, not bad at it either, I think he plays a lot of console "360" at his house. Pops is sore from the defibrillator, he is recovering well, he will be seeing a doctor tomorrow to get some more info.
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July 24, 2012, 07:47:54 PM
 #76

Best wishes pevk2,
Hope it works out as best it can.
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July 24, 2012, 07:51:28 PM
 #77

Best wishes pevk2,
Hope it works out as best it can.

 Smiley me too, me too.
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